Author Topic: Facial Paralysis  (Read 204 times)

CraftyOne

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Facial Paralysis
« on: June 04, 2019, 05:56:26 pm »
Hello All,
I was diagnosed today with a 2.1 cm AN.  I am considering all options, and have a question - has anyone had surgery without facial paralysis?  I don't have it now, and I am scared to death I will get it from surgery :(

CHD63

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Re: Facial Paralysis
« Reply #1 on: June 05, 2019, 12:26:54 pm »
Hi CraftyOne and welcome to this forum of caring and supportive new friends .....

It is highly recommended that you seek opinions from physicians with vast experience treating specifically acoustic neuroma.  In today's world, with experienced surgeons, it is unusual to have permanent facial paralysis.  Some of us experienced mild facial involvement for a few days following surgery, which usually resolves quickly.

That being said, people who have experienced facial paralysis most often are patients who had huge ANs, or some other complicating factor during surgery.

Try not to worry about that possibility.  Also, keep in mind that many, many patients have had successful surgeries with no complications and never post here or on social media.

Best wishes .....

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

chrisabbott

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Re: Facial Paralysis
« Reply #2 on: June 05, 2019, 08:43:29 pm »
That is reassuring to hear Clarice,

I have a large but not huge AN (3.1 cm) and have had facial numbness since last November.  Last week, I experienced the symptoms in my head that tell me something is changing, and I thought my fairly mild facial symptoms had got worse.  Today I met the neurologist that diagnosed me in March, and the first thing she said, was my facial droop had got a little worse since she last saw me, so I know its not my imagination.... I'm not horribly freaked at the thought of having some issues post surgery, but I wouldn't welcome permanent issues, especially with my eye (I really should've bought shares in an eye drop company!)

It makes sense that folks with ongoing issues would be the ones to spend more time online seeking answers and sharing their experiences - I sure hope I get to be someone that shares a positive experience soon (surgery scheduled for June 13th).
VS = 3.1 x 2.8 x 2.5 cm diagnosed 3/2019
Translab June 13th Dr Bien & Dr Dunn in OKC
No change in facial numbness, dry eye (not worse!)

Cheryl R

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Re: Facial Paralysis
« Reply #3 on: June 10, 2019, 11:06:00 pm »
There are many who have no facial paralysis.      The ones with issues tend to stay on facebook and this forum while many leave and are back to their lives with possible adjustment if do lose the hearing.         What damage the tumor has done to the facial nerve plays a part.    Also some swelling a few days after surgery.     Most times it is temporary.     The biggest issue if one does end up with some for a time is to be patient and let the nerve heal.  Not an easy thing.         I hope it goes well for you.         Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Patti

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Re: Facial Paralysis
« Reply #4 on: June 11, 2019, 06:29:32 am »
Nice to be reminded that people without problems just go on with life! This site attracts those of us who have issues! I had a big tumor and had extreme facial paralysis after surgery and it has improved a lot but is still there. But i have accepted it. My husband still thinks I am the most beautiful woman in the world! And more importantly, I feel pretty!  Good luck to you!
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Maria Odete

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Re: Facial Paralysis
« Reply #5 on: June 12, 2019, 06:25:59 am »
Hi Patti,

One of my daughter's made an observation recently regarding the appearance of my face. She told me that my face has always been pretty, but now my face is  prettier than ever before. Like you, Patti, I feel pretty as well.

Maria Odete

Surgical Team: Dr. Fraser Noel, ENT/Otologist/Neurotologist, Victoria, B.C. Canada and Dr. Michael Boyd, Neurosurgeon, Vancouver, B.C. Canada
Dx: 3.5 cm Acoustic Neuroma
Year of Surgery: 1992

PSALM 83:18:"Let men know that You,Whose name Alone is YAHWEH,are the Supreme Head over  all the earth!"-The Holy Scriptures
Isaiah 46:4 "Even to your old age, I am He, and even to gray hairs I will carry you! ..."-The Holy Scriptures

 


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