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Author Topic: Any support groups in Alabama  (Read 696 times)

musicmaker

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Any support groups in Alabama
« on: March 04, 2019, 07:46:10 am »
I have been diagnosed recently and live in west central Alabama. Is there a support group for AN in Alabama?
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mac84

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Re: Any support groups in Alabama
« Reply #1 on: March 04, 2019, 09:34:17 am »
I think there's one in Mobile but there are many of us Alabamians on here.  :)
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Diagnosed 10/13/14 with 1.4cm AN L side
1st Consult with Vanderbilt 11//14
W/W.  Next MRI in April 2015 at Vanderbilt.
April 2015 MRI no growth -
April 2016 MRI no growth - still 1.46cm.
4/17: No growth!
4/18: No growth but hearing deteriorating - MRI 2 yrs
Fitted with Resound Linx 3D 5/18

alabamajane

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Re: Any support groups in Alabama
« Reply #2 on: March 04, 2019, 01:42:42 pm »
Hi musicmaker,
We do have a support group in the Mobile area. We have a new leader who is trying to get a meeting scheduled this month.

In the past We have met on Saturday for a Dutch treat lunch. Sometimes we have had a speaker and sometimes it’s just sharing and answering questions.

As Mac84 says there are quite a few Alabama folks on here. I have not checked in for quite some time myself,,,

Feel free to PM me if you have questions or would be interested in attending a meeting in this area and we can get your contact info to include you.

Good luck to you in your research,,
Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

AlabamaDonna

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Re: Any support groups in Alabama
« Reply #3 on: May 02, 2019, 08:59:21 pm »
There are three of us who meet once in a while. We will be happy to meet with you. This is a scary diagnosis with roller coaster emotions that go up and down.  We are all W & W. You can reach me at newsmom@gmail.com.

Donna
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Diagnosed after sudden hearing loss at age 57
MRI November, 2018 1.7 cm
Steroids restored most hearing; ringing in ear, headaches, tingling on tongue, lips, fatigue, memory loss..
MRI in April, 2019 2.1 cm
Watch & Worry

musicmaker

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Re: Any support groups in Alabama
« Reply #4 on: May 03, 2019, 11:36:55 pm »
Sorry, I have taken so long to respond. Thank you for the invite.  I was invited to your last meeting but I live around 3 hours from Mobile and was unable to attend. 
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