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Author Topic: Any support groups in Alabama  (Read 2754 times)

musicmaker

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Any support groups in Alabama
« on: March 04, 2019, 07:46:10 am »
I have been diagnosed recently and live in west central Alabama. Is there a support group for AN in Alabama?
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mac84

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Re: Any support groups in Alabama
« Reply #1 on: March 04, 2019, 09:34:17 am »
I think there's one in Mobile but there are many of us Alabamians on here.  :)
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Diagnosed 10/13/14 with 1.4cm AN L side
1st Consult with Vanderbilt 11//14
W/W.  Next MRI in April 2015 at Vanderbilt.
April 2015 MRI no growth -
April 2016 MRI no growth - still 1.46cm.
4/17: No growth!
4/18: No growth! MRI 2 yrs
4/20: No growth! Symptoms stable- MRI 2 yrs

alabamajane

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Re: Any support groups in Alabama
« Reply #2 on: March 04, 2019, 01:42:42 pm »
Hi musicmaker,
We do have a support group in the Mobile area. We have a new leader who is trying to get a meeting scheduled this month.

In the past We have met on Saturday for a Dutch treat lunch. Sometimes we have had a speaker and sometimes it’s just sharing and answering questions.

As Mac84 says there are quite a few Alabama folks on here. I have not checked in for quite some time myself,,,

Feel free to PM me if you have questions or would be interested in attending a meeting in this area and we can get your contact info to include you.

Good luck to you in your research,,
Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

AlabamaDonna

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Re: Any support groups in Alabama
« Reply #3 on: May 02, 2019, 08:59:21 pm »
There are three of us who meet once in a while. We will be happy to meet with you. This is a scary diagnosis with roller coaster emotions that go up and down.  We are all W & W. You can reach me at newsmom@gmail.com.

Donna
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Diagnosed after sudden hearing loss at age 57
MRI November, 2018 1.7 cm. MRI in April, 2019 2.1 cm, MRI March, 2022 3.0.
Headaches, tingling on tongue, lips, fatigue, balance, memory loss. UAB Radiation Aug. 2019, UAB Surgery to implant shunt, Oct., 2021. UC San Diego Surgery, July, 2022. Translab.

musicmaker

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Re: Any support groups in Alabama
« Reply #4 on: May 03, 2019, 11:36:55 pm »
Sorry, I have taken so long to respond. Thank you for the invite.  I was invited to your last meeting but I live around 3 hours from Mobile and was unable to attend. 
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