This website and forum is amazing, and I plan on supporting it and posting more in the near future since this is my first post.
In the meantime, I've been having some issues the past 45 days and was hoping to get feedback and thoughts from anyone that has had the same or similar experiences.
I'm 35 years old and had Gamma Knife radiation about 7 months ago, 2.5cm left side, have been healthy and active since I was little. My acoustic neuroma has swelled, 6 month MRI showed it being about 2.8cm, and the past 1 1/2 months haven't been fun.
My two symptoms prior to radiation were numbness in my left face and feeling half-drunk a majority of the time. The past 1 1/2 months the numbness has increased, I now feel full-drunk all the time, extreme fatigue, and minimal appetite. My doctor prescribed me steroids for a few weeks which I have already taken but they only helped some for about the first 24 hours.
I'm mostly concerned about the extreme fatigue, and some about feeling drunk all the time. For the past 1 1/2 months I've been sleeping 13-16 hours a day (the steroids I took were supposed to amp you up/give you much more energy, among help reduce swelling/inflammation and appetite from my understanding). I don't want to sleep that much but I get extremely exhausted doing the simplest things (walking a few blocks, meeting a friend for lunch, doing the dishes, etc.), just have no energy. I haven't been able to work the past 45 days (it's been that bad) and my body/brain is pretty much forcing me to sleep often.
My doctor mentioned swelling usually occurs in 10%-12% of patients similar to my situation, it usually takes 3 weeks to 4 months for the swelling to go down, and in 95% of patients the swelling does go down.
I would love to hear from anyone that has experienced something similar and to find out how long this lasted for them, or any other thoughts and feedback people can share. I'm optimistic about the 95% chance of the swelling to go down but I can't say it's been fun the past 1 1/2 months. It seems like I just need to ride out the storm but currently it's a bit scary if I'm being honest, and I look forward to hearing from people in this great community!
On a side note, the first 5 1/2 months after radiation went very well for the most part, and once I get over this rough patch I plan on sharing "my story" on this site/forum to try and help others. Thank you in advance for any knowledge you can share!