Author Topic: 5 year update and results  (Read 708 times)

kejac

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5 year update and results
« on: December 22, 2018, 06:33:45 pm »
Hello Friendly People,

Quick update on my cyberknife treatment at Stanford done 5 years ago.

Well, just under 5 years. I requested to be scanned early due to my insurance plan changing 2019.

12/14/2018 I went in for an MRI. I am allergic to the contrast gadolinium so I had to pre-medicate with Prednisone and Benadryl.
Turns out the pre-meds didn't work and I had an allergic reaction. Small hive on the forearm and a tingling in my throat.

Few hours later I met with Dr Steven Chang, he reviewed my scans and has concluded no change, same size as 2 years ago, 11x6x5. We discussed the reaction from the contrast and told me I wouldnt need it any longer, he could see the tumor well enough without it.

My hearing has diminished a bit and have ok word recognition. My Audiologist says I would benefit from a hearing aid. I'm considering it. Tinnitus is always there, mostly at a soft/low, high pitch whine. It gets louder when i'm stressed, have a cold and or when weather moves in.
Sometimes it really screams!

All in all it was a good day with good results.

Thanks,

kejac






« Last Edit: December 22, 2018, 11:16:21 pm by kejac »
Tumor discovered 8/2012 10x5x5
WW 6 months tumor grew 12x6x6
CK treatment Stanford 3/2014
6 month scan swelled to 15x9x9
1 year scan tumor reduced to 14x7x6
2 year scan tumor reduced to 12x6x5
3 year scan tumor stable 11x6x5
5 year scan no change 11x6x5

SP

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Re: 5 year update and results
« Reply #1 on: December 23, 2018, 04:24:11 am »
Hi Kejac,

Good to hear that you are doing well at the CK 5 year mark!! Hearing aid has been a good investment for me, worth a try especially for social situations.

wishing you good health,

Stella
2.9 cm Left-side AN (Aug 2018)
2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

notaclone13

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Re: 5 year update and results
« Reply #2 on: January 13, 2019, 02:44:16 pm »
Hi Kejac,

Just seeing this today and want to thank you for posting. It's good to hear the radiation has done its job and that the AN has stopped growing. Wishing you smooth sailing from here on.

JLR

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Re: 5 year update and results
« Reply #3 on: January 15, 2019, 05:10:59 am »
Fabulous results! All the very best in 2019.

v357139

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Re: 5 year update and results
« Reply #4 on: January 17, 2019, 09:30:11 pm »
Kejac,
Jinx, just had my 5 year mri also.  Also a good result. I had surgery.  We are good examples showing great results from two different methods.  Congratulations to you, and all the best going forward.
Rich
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

 


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