Hello everyone - I am one of the lucky ones in the AN club now
I went to the ER a month ago and received a cat scan. They came in and said "we found a mass". Wow, that hits you hard! They said it was probably small and nothing to worry about and they would get me in for an MRI to see more details on it. I got the MRI and spent the night in the hospital. The next afternoon, the neurologist visits me and says "they told you about the tumor right"?. I said yeah, they said I had a small mass. He said it is not small at all, it is 3cm and pushing on your brainstem.
How do you prepare yourself for that?
So I started doing research and this site has been so very helpful in understanding the situation and treatment options.
I will be having Retrosigmoid surgery with Drs Tamargo, Kaplan and Chien on October 16 at Johns Hopkins. I like that Dr Tamargo has done over 800 of these surgeries. It seems like surgical experience with this type of tumor is one of the most critical aspects to a successful surgery and recovery.
I am super nervous but at the same time I just want it out!
I will keep everyone updated as I go through this Journey