Author Topic: Eyes pain  (Read 1467 times)

ad325

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Eyes pain
« on: August 15, 2018, 01:43:02 pm »
I am waiting for surgery to be in one month. I am experiencing pain in my eyes. I went to ophthalmologist and all is ok. I think that the pain is related with my effort to pay attention and keep my balance, even though is done subconsciously. Does any body experience that? Thank you. I am very grateful for this forum.
Translabyrinthine - 10/30/18
VP Shunt 11/2/18
Drs Friedman and Schwartz- UC San-Diego

v357139

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Re: Eyes pain
« Reply #1 on: August 23, 2018, 08:56:41 pm »
Could be almost anything.  But I would inform the surgeons in case there is anything they want to check as a precaution.
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

ad325

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Re: Eyes pain
« Reply #2 on: September 01, 2018, 08:05:41 pm »
Thank you. I mentioned to Dr, he said that doesn't look related to neuroma because location. My AN is close to brain stem. I think eyes are one of my weakest part and they are overworking to compensate for my balance. Thanks again, is nice to feel that somebody is reading and trying to help!
Translabyrinthine - 10/30/18
VP Shunt 11/2/18
Drs Friedman and Schwartz- UC San-Diego

Jill Marie

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Re: Eyes pain
« Reply #3 on: September 04, 2018, 12:47:24 pm »
It could be related to your tumor, doesn't matter that the tumor isn't near your eyes.  Doctors don't know everything, they aren't living in your world so don't have all the answers.  Makes sense that your eyes could be overworked from the strain of keeping your balance. Give your body lots of rest, especially your eyes.  Let us know how you're doing.  Jill :)
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

jami

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Re: Eyes pain
« Reply #4 on: September 16, 2018, 04:57:23 pm »
Hi,

Eye issues + facial sensations were my leading symptoms (i had assumed balance issues were due to aging). I saw the opthamologist in a parallel with the neurologist, as the eyes impacted my day to day the most. They found no issues.

I am about 5 weeks post surgery and scheduling a follow up with an ophthalmologist. The eye (surgery side) irritation grows. My family can tell when I am tired because my OTHER eye (the side I laid on for 10.5 hours during surgery) swells visibly -- although i am feeling the irritation on the surgery side. Appreciate all the insights from folks on the forum, thank you. Will continue to pursue this.
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment

Anne Amis

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Re: Eyes pain
« Reply #5 on: November 28, 2018, 07:53:10 am »
Hi Jami,
I was curious as to what your last few weeks have been like with your eye and what the ophthalmologist said...I am about 4 weeks post surgery and after having no facial nerve or eye issues the first two weeks post surgery, they have developed since then and my surgeon just told me to see an ophthalmologist to see if there's any cornea damage (which I'm not sure why...my main concerns were not being able to completely shut my eye, which I know is not unusual, just wondering how long that might last). I've had blurrier vision than usual when I read, unsteadiness, and like you mentioned, I am feeling the fatigue on the other eye, especially at the end of the day.

Hope you are doing better!
AN 2.1cm right ear diagnosed 11/2104; no symptoms
Watched and waited four years; stable and no symptoms
AN growth to 2.39 cm detected 9/2018
Retrosigmoid Surgery done at MD Anderson 11/1/2018
Tumor fully removed; near to total hearing loss right ear; facial nerves issues; fatigue

jami

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Re: Eyes pain
« Reply #6 on: November 29, 2018, 09:38:40 am »
Hi Anne Amis,

My eye had been doing much better, maybe needed time. Although TODAY its super itchy / feels like it has a stone in it / is blurry - so I am drowning it with eye drops. My theory is that when I work too hard (staring at the computer screen for 10+ hours is too much) and I get tired, my eye shows it first.

I have not had my ophthalmologist appointment yet.

(I HAVE been able to shut my eye successfully)
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment

MT

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  • Hoping to recover from facial palsy...
Re: Eyes pain
« Reply #7 on: November 30, 2018, 03:11:46 pm »
Besides drops, apply ointment before you sleep. It really helped me control itching and irritation (more than the drops).
No symptoms except mild hearing loss
RS procedure on 26-Oct-18 (2.7 x 2.5 cm AN)
Deafness and facial palsy on right side
26-Feb-19 MRI showed 0.8 cm of leftover tumor
Slight movement on ~7-Jul-19 but mostly paralyzed

Full story:
https://www.anausa.org/smf/index.php?topic=24255.msg97977829

 


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