Author Topic: Night time preservative free ointment  (Read 2293 times)

JLR

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Night time preservative free ointment
« on: July 23, 2018, 06:39:10 pm »
I have been using ointment at bedtime for these past 20 months. Used mostly Refresh PM ointment but it apparently is off the market. Been everywhere. The CVS brand has the same balance of ingredients but I've noticed recently that my eye bothers me at night time so I thought I'd better switch brands. CVS now has Retaine Nighttime, it's preservative free, but I never heard of that brand, in fact neither did the pharmacist. Anyway, I purchased it. And just applied it. So my question is has anyone tried that brand. My dry eye is way better but my doctor recommends continuing with drops daytime and ointment at night. Thanks everyone.  Joan

Patti

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Re: Night time preservative free ointment
« Reply #1 on: July 24, 2018, 06:09:18 am »
Joan-I have been using eyedrops all day and night for 18 years! I'm not sure if it ever gets better.  But just to give you a history, For the first 14 years I used an ointment in a green bottle (refresh i think), but the critical thing was it had to be 1% methylcellulose which is thicker.  But then i was having frequent problems.  My doctor said i had to switch to preservative free drops so now i buy Refresh Celluvisc.  The nice thing is that it dries at night and glues my eyes shut so i don't need any greasy ointment (which does not keep my eye shut).  It is a constant issue.  Patti
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

LakeErie

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Re: Night time preservative free ointment
« Reply #2 on: July 24, 2018, 10:45:47 am »
Sorry, I have never used the brand you mentioned, but have a general question for you. Over the 20 month period, have you regained better lid closure to any degree, or better eyelid movement in general? Even if not normal yet? Thanks
4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Patti

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Re: Night time preservative free ointment
« Reply #3 on: July 25, 2018, 07:30:23 am »
actually my lid closure got better so i convinced the surgeon to remove the gold eye-lid weight maybe after 7 years? it still is good but not total.
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

JLR

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Re: Night time preservative free ointment
« Reply #4 on: July 31, 2018, 05:47:03 am »
I'm now using CVS brand ointment preservative free as it's the closest to Refresh Pm which apparently has been discontinued. And yes I can easily close my eye. I had to tape my eye closed at night the first year or so but it does thank goodness close. But I have synkensis and still paralyzed on certain spots of face. For example my right eyebrow does not move. What a journey. Let's please stay in touch. Joan

nancyann

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Re: Night time preservative free ointment
« Reply #5 on: July 31, 2018, 05:50:58 pm »
I use Systane eye ointment, closest I've found to Refresh pm.
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

kkc

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Re: Night time preservative free ointment
« Reply #6 on: August 01, 2018, 02:13:18 pm »
I use the WalMart brand of nighttime ointment - on the label it says "compares to Refresh PM"

JLR

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Re: Night time preservative free ointment
« Reply #7 on: August 02, 2018, 04:24:11 am »
Hi does the Walmart brand say Preservative free?  Also, I tried Systane ointment. It has a smaller amount of petroleum and mineral oil. And it irritated my eye. I'm really so sick and tired of having an eye that needs care all the time. I do it but I'm thinking this is lifelong. And my mouth appears more slanted. Anyway today is my follow up MRI. So far it's been uneventful let's hope it's aok.  Have a good day. Joan

Patti

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Re: Night time preservative free ointment
« Reply #8 on: August 02, 2018, 08:58:26 am »
Let us know how it goes!
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

kkc

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Re: Night time preservative free ointment
« Reply #9 on: August 03, 2018, 05:06:26 pm »
Yes, the WalMart brand is preservative free.  That's all I use in eye care products.

JLR

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Re: Night time preservative free ointment
« Reply #10 on: August 14, 2018, 05:16:20 am »
Hi all, Had follow up MRI. All ok. The remaining tumor is thankfully stable.  I'll have another in November which will be my 2 year post op MRI. Had I had surgery when the AN was very very small I wouldn't be in this predicament. But, CK was recommended. Of course that only lasted 5 years, then my TN was very very bad. I had no choice but to do surgery. But it could be worse.  Have a good day. Joan

Patti

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Re: Night time preservative free ointment
« Reply #11 on: August 14, 2018, 06:48:23 am »
YAY!
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Cityview

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Re: Night time preservative free ointment
« Reply #12 on: August 14, 2018, 05:08:14 pm »
Joan
Congratulations on a stable MRI.
I hope it stays that way and the rest of your journey is easy as you have been through a lot.
5 years ww
small AN

JLR

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Re: Night time preservative free ointment
« Reply #13 on: August 15, 2018, 06:04:28 am »
Thanks so much. I do have synkenisis. Had useless facial therapy. I just have to live with it. Have a great day. Joan

ad325

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Re: Night time preservative free ointment
« Reply #14 on: December 22, 2018, 08:04:14 am »
Hi Joan
I just saw your post. I am using Retainer PM night and day because my eye is so dry. It was recommended at UC-San Diego. But it looks like it is not easy to find, at least at CVS. I just bought some online. Wish you the best.
Translabyrinthine - 10/30/18
VP Shunt 11/2/18
Drs Friedman and Schwartz- UC San-Diego