Author Topic: My Cyber Knife Adventure  (Read 10274 times)

gary.s

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Re: My Cyber Knife Adventure
« Reply #120 on: May 18, 2019, 10:27:14 pm »
Thanks Jessica,

It is a great relief to know that things are progressing as they should. In time, I am hopeful that my brain will adjust to my balance issues and dizziness. In the meantime, I am gonna keep pushing forward and dealing with the symptoms when they occur. Be well and thanks for your support and kindness.

Gary
Mild symptoms July 2014
MRI 1/3/2017 rt side AN 1.40 cm x 1.59 cm
MRI 3/5/2018 AN 1.70 cm x 2.07 cm
CK April 16-20, 2018, Barrow Neurological Institute
9/2018 hearing aid Phonak Audeo B and Cros B
MRI 11/30/2018 AN 1.62 cm x 1.83 cm, mild necrosis
MRI 5/16/2019 No change in AN size, necrosis

SP

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Re: My Cyber Knife Adventure
« Reply #121 on: May 23, 2019, 02:25:39 am »
Hi Gary,

It's good news to see increased necrosis & the tinnitus gone - I'm glad you're keeping positive about the triggers that come ;hopefully they too will dissipate over time. It's a stress inducing diagnosis and treatment to deal with, i hope  the 12 month reprieve from attnding an MRI is a stress relief for you ( i was usre happy to hear that at my last consult :))

healthy healing ahead,

Stella
2.9 cm Left-side AN (Aug 2018)
2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

gary.s

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Re: My Cyber Knife Adventure
« Reply #122 on: May 23, 2019, 10:38:27 am »
Yes Stella, a 12 month reprieve is what I need now. Just enough time to relax and get some more healing done. This entire AN experience is anxiety inducing, although it seems like we are all able to work through it. Just have to be strong and keep it together. Nice hearing from you Stella, hope all is well with you also. Be well.

Gary
Mild symptoms July 2014
MRI 1/3/2017 rt side AN 1.40 cm x 1.59 cm
MRI 3/5/2018 AN 1.70 cm x 2.07 cm
CK April 16-20, 2018, Barrow Neurological Institute
9/2018 hearing aid Phonak Audeo B and Cros B
MRI 11/30/2018 AN 1.62 cm x 1.83 cm, mild necrosis
MRI 5/16/2019 No change in AN size, necrosis

gary.s

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Re: My Cyber Knife Adventure
« Reply #123 on: July 15, 2019, 03:00:35 pm »
When I had a hearing test about a year ago, they found that as a result of my AN, my acoustic reflex was non-functional. The acoustic reflex is the ability of two inner ear muscles to contract, thus reducing incoming sound by at least 20 db. When the acoustic reflex is non-functional, noisy restaurants, parties, laughter, vacuum cleaners, and even the air conditioning systems are at times intolerably loud. I am not sure why the reflex does not work in both ears when my AN is in one ear. They must have some kind of connected circuitry in the brain. There are a lot of scientific articles written on AN's and their impact on the acoustic reflex, in addition to ongoing research. After reading several of these articles, I now have a better understanding of why the world around me sounds so darn loud. Just another condition caused by my AN.

Gary

Mild symptoms July 2014
MRI 1/3/2017 rt side AN 1.40 cm x 1.59 cm
MRI 3/5/2018 AN 1.70 cm x 2.07 cm
CK April 16-20, 2018, Barrow Neurological Institute
9/2018 hearing aid Phonak Audeo B and Cros B
MRI 11/30/2018 AN 1.62 cm x 1.83 cm, mild necrosis
MRI 5/16/2019 No change in AN size, necrosis

 


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