Author Topic: Stabbing ear pain at night  (Read 2919 times)

mwatto

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Stabbing ear pain at night
« on: March 11, 2022, 06:29:26 pm »
Hi all since CK I cannot seem to lie on that side (3 years now!) MRI is stable and in day nothing to talk of (after the Pfizer jab one iI had pain ramp up that felt trigeminal but ENT wouldnt see me as not fully vx - didnt want it to get worse with second. That was 5 months agao and has improved with lemon balm tincture and melatonin). What would cause this? I have nothing in day but every night it wakes me up- deep pain in and around ear? Its a sharp stabbing if I lie on that side. Specialist says not CK related but its getting worse. No other issues even my hearing and balance ok.
« Last Edit: March 11, 2022, 06:48:38 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: Stabbing ear pain at night
« Reply #1 on: March 12, 2022, 07:35:54 pm »
Hi mwatto!

I am so glad that your hearing and balance are okay long after your CK.  I can't imagine what is causing your nightly ear pain.  If it had anything to do with your vaccine, that would be quite rare.  I am fully vaccinated with the Pfizer, and I have had no problems whatsoever from it.  Would your ENT be willing to see you now -- since things have changed in the last five months?  And if not, could he/she have a phone or Zoom conference to discuss what could possibly cause deep ear pain at night with no pain in the day? 

I'm hoping this can be resolved for you soon!  Best wishes in your future!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Stabbing ear pain at night
« Reply #2 on: March 13, 2022, 07:46:23 pm »
Hi there I live in Perth and we are new to Covid cases so some panic. Def after Pfizer vax I experienced a dramatic escalation in symptoms from eye pain to ear stabbing pain along with other very unpleasant side effects. I am on a forum for neuro vx side effects and not uncommon which was reassuring as I thought was just the AN - its not (increased inflammation, microclotting, reactivation of dormant virus). At 5 months most of my symptoms are improved. But- for three years I cannot lie on that side and this puzzles me. My location for AN is ipsilateral to the trigeminal nerve V. My specialist says that they did not treat this nerve and he says my pain not related to treatrment- so maybe its pressing on the nerve then. I am thinking of having an MRA as the MRI revealed nothing. Thing is it wakes me every 3 hrs if I turn onto that side in sleep. Sometimes its behind eye or deep in head. My AN respionded well to CK but I am bothered by this.
« Last Edit: March 13, 2022, 07:48:07 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

Bp15

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Re: Stabbing ear pain at night
« Reply #3 on: May 15, 2022, 02:31:05 pm »
I’ve developed some issues, not sure if this is related to vaccine (Pfizer), but let me tell you what I have.  AN left side, removal of the inner ear so no hearing on that ear (Not sure if this is call trans-lab or something else…, i lost track of all the terminologies after 15 years), and yes, the surgery was done 15 years ago.  After 6 months, I had CFS leak into my inner ear.  My ENT said that she can see the fluid behind the ear-drum.  Took me about 2 years to get used to the imbalances and started to live normally again w/o hearing and some loss of balance.  Took me at least 5 years to be able to sleep on that side, so just wait a bit longer if you still have issue sleeping on that side. 

Recently, about 3 months ago, I started to have the itch inside the AN ear…really itchy and I had to press hard a the bottom of the earlobe to relieve some itch.  Sometimes I have to use the cotton swab to scratch the inner ear canal too (But NOT recommended by my ENT).  Then about a month or so ago, I started to have twitches inside the AN ear.  Then just last week, the itchness mostly gone (only sometimes now), but the twitches seem to happen more frequently and so is the tinnitus. Tinnitus is very loud now and seems to amplified with noise/sound from the good ear…(i closed off the good ear and the AN side does not amplify the tinnitus so I assume that is caused by sound from the good ear).  I have some mild headache on top of my eyebrows (both sides).  Also experiencing some facial tenseness in the AN side.  I’ve been very worried that the tumor has come back.  I’ve always had tinnitus since the start of AN and before and after the surgery but not this loud and it sounds like find bubbling sound instead of the normal high/medium pitch sound.  All the symptoms I’m having now seems to either indicate that the tumor has return on the facial nerve or something (like vaccine) has disturbed the area.

However, when I told my brother, he called me and said that his wife (She has no AN issue)…also got the second Pfizer booster shot 2 weeks ago (mine was 3 weeks ago), and she also is experiencing itches on one year but both of her ears are having issue with tinnitus and muffled.  Her friend also has same issue.  My older brother also has same issue with his ear after getting the Pfizer vaccine (his is the first).  I’m starting to think that my itchy issue starting from getting the first booster and now with the second booster shot, it is getting worse???  All I am saying is this might be the pattern (I hope, since I don’t want to get the tumor again!).  My older brother’s issue seems to subside after few weeks.  My sister in law issue seems to get better as well after 3-4 weeks, but she only back to 60% normalcy in terms of hearing.

Did you also see the news about some Vaccine researcher also experiencing the same issue?  He is paid to do research for one of these vaccine companies and he is having this issue too and he is asking the govement to look into this unreported issue.

At any rate, I’m trying to see if i can make appointment to see doctor Slattery or Dr. Lokovic…I know they probably work together on the AN surgery and one is a Otolaryngology and dr. Lokovic is a neurologist.  Which doctor does one need to see first or does not matter?

Thanks and hope my information i have hear could help someone.

chayasara

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Re: Stabbing ear pain at night
« Reply #4 on: June 20, 2022, 07:24:08 pm »
I also have major ear pain at night.  I think  it somewhat stems from tension on my neck. Muscles relaxants help a little, but the one thing that seems to help the most is dry-needling the top and bottom of whatever muscle it is. My chiropractor did to me and it was almost miraculous how the pain disappeared for the next week or so.

mwatto

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Re: Stabbing ear pain at night
« Reply #5 on: June 21, 2022, 03:56:26 am »
Hi Holly that's interesting! I will look into that- actually my specialist suggested accupuncture. It really ramped up after I had the Pfizer vaccine - was too awful. Somewhat better 8 months later though I now take a few things.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing