mgus

[paulinrio]

I had my acoustic neuroma surgery almost 4 years ago. I have now been diagnosed with mgus. I was just curious if any other patients have had the same situation. Thank you Paul Wasserman

[ANSydney]

Paul, Monoclonal Gammopathy of Undetermined Significance or MGUS appears to be quite prevalent with the chances of getting it depending on age; 3% (>50), 5% (>70) and 7.5% (>85). As you know, an acoustic neuroma is much rarer at about 1 to 2 per 100,000 per year. Even if someone with an AN got MGUS, this would be expected in about 1 in 20 cases. The better search is those that have mgus that also have an AN; this would be more indicative.

My brief search does not show any association between an AN and mgus.

Hope your mgus does not progress to something to be worried about.

[paulinrio]

Sydney, I apologize for not responding. Honestly, I have not spent much time on this site over te last year. I continue with a lot of balance issues and have been investigating alternative options. I live in Brasil, where care is lacking, but I am on an infrequent business trip in Central America. I am curious if you have ever heard of KAMBO. It is a treatment involving the use of the venom of Amazonian frogs and people who I have spoken to ,with other issues, have experienced great success with this approach. Just curious. I am in Guatemala, now, and return to Rio on Tuesday, when I will take new blood work to send to my oncologist at the Cleveland Clinic. I will investigate, for my curiosity, the people with MGUS, who may have AN. Thank you so much and again, sorry for the delay. All the best, Paul

[chicagorose]

I was actually diagnosed with SMM, the intermediate stage between MGUS and MM, several years before being diagnosed with AN. There is no correlation between the two.