Author Topic: Prospective Study: Aspirin Therapy  (Read 1359 times)

ANSydney

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Prospective Study: Aspirin Therapy
« on: August 31, 2017, 03:26:59 am »
I'd like to start a prospective study on the results following aspiring therapy. If you are on aspirin therapy please add to this post the current dimensions of your tumor. I'll maintain a table and we'll see over the years what the results are.

See http://www.anausa.org/smf/index.php?topic=23670.msg979775078#msg979775078 if you'd like to check the tumor dimensions yourself.

Even though rodneyd is not a prospective entry, I've included him.

Username  Entry 1  Entry 2  Entry 3
rodneyd  Jun 2016 0.96 x 1.07 x 0.80  Jul 2017 0.82 x 0.86 x 0.80
ANSydney  Feb 2017 2.56 x 2.49 x 2.94  Aug 2017 2.55 x 2.51 x 2.98  Feb 2018 2.36 x 2.54 x 2.91
daoisthere  Aug 2017 1.08 x 0.36 x 0.42  Jan 18 1.20 x 0.50 x 0.40  
Muffin  Sep 2017 0.6 x 0.5 x 0.3   
« Last Edit: February 26, 2018, 01:56:28 am by ANSydney »

daoisthere

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Re: Prospective Study: Aspirin Therapy
« Reply #1 on: November 09, 2017, 07:29:41 pm »
Hi you crazy aspirin brigaders...  If you are taking a daily aspirin.  Please consider posting your MRI results on the chart that ANSydney has compiled.  I for one am on the list and would like to see the data from our group study.   We can self report.  What if an aspirin really helps? I am interested in finding out.

Peace,
Daoisthere

08/21/2017 MRI reveals AN
10.8 x 3.6 x 4.2 mm Completely fills Right Canal
10/09/2017 Watch and Wait
01/19/2018 2nd MRI  Tesla 3 12 x 5 x 4 mm
New Diagnosis - Partial Empty Sella

Muffin

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Re: Prospective Study: Aspirin Therapy
« Reply #2 on: November 13, 2017, 06:50:51 pm »
I am excited about the aspirin study, too, and faithfully taking my baby aspirin daily!  I see aspirin as gold now.  I am so hopeful!  I just believe there is something out there for us and this is a harmless enough pill to swallow, pun intended. :)
6/10/17: Sudden Hearing Loss
9/20/17:  MRI Shows VS in R IAC Measuring 6x5x3 mm
10/18/17:  On Watch and Wait Status

judyl

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Re: Prospective Study: Aspirin Therapy
« Reply #3 on: November 16, 2017, 07:29:24 pm »
Information on past studies https://www.tinnitusformula.com/library/aspirin-slows-acoustic-neuroma-growth/

There is another article I found that claims NSAIDs May Halt Growth of Vestibular Schwannomas

Here is the study design - not yet recruiting. It uses 325 mg. aspirin, not baby aspirin, except in those weighing less than 110. https://clinicaltrials.gov/ct2/show/NCT03079999

There is still a risk to taking aspirin or NSAIDS twice daily.

Personally, I am taking arnica twice daily. It has benefits of aspirin without the risks.

11/2/17 MRI without contrast for positional vertigo-1.3 cm mass in left internal auditory canal
11/8/17 MRI with contrast - AN 1.4 cm by 0.5 cm by 0.4 cm
12/19/17 Watch and wait; follow up in 6 months
Mild to moderately severe left ear hearing loss

daoisthere

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Re: Prospective Study: Aspirin Therapy
« Reply #4 on: November 17, 2017, 05:24:24 pm »
Thanks Judy...

Very encouraging studies. 

Thanks ANSydney...

For helping me find my way towards 'watch and wait', thus preserving my hearing. Here is an upbeat study.

https://www.ncbi.nlm.nih.gov/pubmed/19887973

Peace,
Daoisthere

08/21/2017 MRI reveals AN
10.8 x 3.6 x 4.2 mm Completely fills Right Canal
10/09/2017 Watch and Wait
01/19/2018 2nd MRI  Tesla 3 12 x 5 x 4 mm
New Diagnosis - Partial Empty Sella

ColleenS

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Re: Prospective Study: Aspirin Therapy
« Reply #5 on: December 14, 2017, 12:59:00 pm »
I have not been taking aspirin for this purpose, but I will now. I have taken the lesser dose version once a week or so for high cholesterol. I would be happy to be in the study ANSydney. My stats are in my storyline.
Surgery date 5/2/2017 @ Vanderbilt Translab approach with Drs. Haynes & Chambless. Love them :)
Success: removed 99.9% of tumor; no facial issues
Readmitted on 5/7/17 for CFL, had a lumbar drain inserted; CFL repair surgery on 5/14/17 and sprung on 5/15/17.

ANSydney

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Re: Prospective Study: Aspirin Therapy
« Reply #6 on: February 26, 2018, 02:08:52 am »
I've made a new entry following my MRI last Saturday. It certainly has not grown and may have shrunk a little. These are my measurements and we'll see what the radiologist say. Also, my hearing test last Friday was somewhat better than the past few months.

ColleenS

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Re: Prospective Study: Aspirin Therapy
« Reply #7 on: March 02, 2018, 01:56:05 pm »
ANSydney, that is terrific news!
Surgery date 5/2/2017 @ Vanderbilt Translab approach with Drs. Haynes & Chambless. Love them :)
Success: removed 99.9% of tumor; no facial issues
Readmitted on 5/7/17 for CFL, had a lumbar drain inserted; CFL repair surgery on 5/14/17 and sprung on 5/15/17.

ANSydney

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Re: Prospective Study: Aspirin Therapy
« Reply #8 on: March 02, 2018, 04:37:06 pm »
Thank you Colleen. We'll see if this is a trend or a one off (monthly hearing tests and next MRI in 6 months).

 


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