Author Topic: My CyberKnife/AN Journey Begins  (Read 5672 times)

orange37

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Re: My CyberKnife/AN Journey Begins
« Reply #30 on: October 20, 2017, 02:40:47 pm »
Thanks! Just contacted him!

dalemccl

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Re: My CyberKnife/AN Journey Begins
« Reply #31 on: April 19, 2018, 05:49:00 pm »
I'm the OP for this thread and am updating it with the results of my 1-year post-CyberKnife MRI:

I met with the radiation oncologist today, 04/19/2018, to get the results of the 1-year MRI that was done 2 days ago.  The tumor is smaller than at the 6-month post-CK MRI.  It is now 18mm x 11mm x 11mm compared to 20.6mm x 12.9mm at 6 months. (The full history of the measurements is in my signature).  This was the first time the third dimension was specified by the radiologist who interpreted the MRI; always before they only stated 2 directions.)  The radiation oncologist felt this represented actual shrinkage of the tumor and not just measurement error.   

I have had no post-CK problems other than mild hemi-facial spasms for a couple weeks at about 4 months post-CK.  I have no useful hearing left in the AN ear (right ear), but that was the case even before CK.  Mild tinnitus in the AN ear, but no worse than before CK.  No noticeable balance problems.   

The doctor scheduled another MRI for one year from now.  I'll update this thread then, unless something happens in the meantime, such as new symptoms.
10/2015 16mm x 9mm right-side AN found. W&W
01/2016 15mm x 6.7mm. Still W&W
01/2017 19mm x 10 mm.  Decided on CK
04/2017 20mm x 13mm  prior to 5-session CK at Parkview Fort Wayne, IN
10/2017  6-month MRI: 20.6mm x 12.9mm
04/17/2018 1 year MRI: 18mm x 11mm  x 11mm

notaclone13

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Re: My CyberKnife/AN Journey Begins
« Reply #32 on: April 19, 2018, 09:12:25 pm »
Thanks for posting your 1 year post Cknife results. Looks like the measurements are going in the right direction. Hoping they go even lower by next year’s MRI. Good to hear that your facial spasms were of short duration and your balance is good as well. Wishing you continued success from here on out.

dalemccl

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Re: My CyberKnife/AN Journey Begins
« Reply #33 on: April 20, 2018, 08:36:47 pm »
Thanks notaclone13.
10/2015 16mm x 9mm right-side AN found. W&W
01/2016 15mm x 6.7mm. Still W&W
01/2017 19mm x 10 mm.  Decided on CK
04/2017 20mm x 13mm  prior to 5-session CK at Parkview Fort Wayne, IN
10/2017  6-month MRI: 20.6mm x 12.9mm
04/17/2018 1 year MRI: 18mm x 11mm  x 11mm

Patti

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Re: My CyberKnife/AN Journey Begins
« Reply #34 on: April 21, 2018, 02:20:26 pm »
Good to hear!!!!  Thanks for the update!
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

 


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