My tumor was diagnosed 14 years ago, and I thought we had a deal. I wouldn't bother him and he wouldn't bother me. Well, he reneged on the deal and started pressing on my trigeminal nerve, just to get attention. Little bastard. So I flew to LA last week, had my pre-op with Dr Stefan, and Monday morning got my revenge. Sadly not completely, but well enough.
I may be 74, but I'd rather keep my facial nerve and balance as intact as possible. So I asked Dr. Schwartz if he could just carve out the chunk of tumor pressing on the nerve and also perform an MVD (micro vascular decompression), which is when they put a little piece of Teflon between the trigeminal nerve and whatever is irritating it. That's exactly what he did. The rest of the tumor was pretty well wrapped around my facial nerve and still is.
So what are the odds it will grow and do its thing again? I don't know. It took 12 years to grow from 1.4 to 1.7, so is considered slow growing. I'm doing really well in recovering, but would not like to go through it again. My husband and I are at Seton and will go home the day after Christmas. My TN pain is gone, I'm walking all over the place and not staggering, my face is the same as it was, and maybe I'll die before trouble returns!