Kinda late to post here but maybe my experience with symptoms might be relatable and also I'm new to posting here too so I'm using this to get my feet wet!
Along with quite a lot of hearing loss and constant but varying degrees of "wonkiness", I have stiff and achy neck and shoulder muscles most all the time and when I sleep, I feel like my muscles in these areas continue to work overtime so I'm not able to rest the way I used to. I also have considerably less stamina than I had previous to having my AN. I often get tired by mid day. I nap if I can and sleep more at night, as well. I also feel less mentally sharp, likely from being a little tired much of the time.
My consulting Neurotologist (at House) confirmed that the muscle firing and general fatigue are from the vestibular nerve impairment that causes the brain to respond to the faulty signals it receives, misdirecting muscle function. It made sense to me. In the recent ANA survey, I recall that on average, folks reported around a 20% reduction in general quality of life with an AN. That seems about right to me, though I hasten to add that Life is still good-a little more challenging-but still good!
My tumor seems to be about the size of yours and I'm leaning very strongly toward GK, maybe CK. Seems outcomes are similar to the surgery options but without the hospital stay and down time which would be risky and costly for me.
I know you'll have your consultations soon. I hope this goes well and that you continue to find your best path forward!
James, Southern Oregon