Author Topic: Memory loss post surgery  (Read 60392 times)

surfagain

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Re: Memory loss post surgery
« Reply #30 on: June 11, 2017, 10:25:36 am »
14 months post surgery and yes.  Definitely significant loss of memory for me.  The doctors position is that the tumor location of the brain has nothing to do with memory function. Your sharing provides a sense of relief to know I am not alone.

Frederic

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Re: Memory loss post surgery
« Reply #31 on: August 11, 2017, 03:22:51 am »
Hi,

I also suffer from memory loss after the AN operation and my memory isn't what it used to be.

It is also taking it's toll on my work as I am a programmer and I often need to repeat tasks as I lost track of what I did the day before or sometimes a few hours before.

I still hope everything will improve and keep on doing the best I can.

Regards,
Frederic

ANSydney

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Re: Memory loss post surgery
« Reply #32 on: August 12, 2017, 01:39:08 am »
Hi Frederic, as a coping mechanism, consider adding a comment something like //#UTH Need to parse this string and ensure first five parameters are strings and the last two are floats. Be careful about endiness.

That way when you come back tomorrow, you know exactly what the next planned step and anything to watch out for. This is what I do. Sometimes even just before meetings. I also keep several small notepads hand to record information that I may require soon (as well as the usual one for making notes).

 

Frederic

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Re: Memory loss post surgery
« Reply #33 on: August 15, 2017, 07:48:34 am »
I am definitely going to do that I am sure it will help!

Interruptions are the worst, when I am in the middle of something and I get interrupted I need to figure out where I left of.

Never needed to do that before the surgery, could jump right back where I left of.

Going to apply that from now on when I get interrupted too, just make a note or comment before I attend to the person interrupting me.

Thank you  :)

pmasse13

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Re: Memory loss post surgery
« Reply #34 on: May 20, 2018, 05:11:52 pm »
Hi Everyone,
   My Son who is now 38yo, went through this Nightmare at age 34.  He just recently regained feeling in his left hand.  The left side of his face is still numb and his nose twitches.  He's been SO Brave and Courageous throughout this entire time.  He just told me that he's experiencing memory loss.  I was wondering if any of you have been able to recover your memory after having gone through this.  I am broken hearted over this.  He's my only son and I love him so.  I wish there were something I could do to relieve his pain in some way.  Thank you for any help you may provide.  I wish you ALL the Very Best Recovery.

abagarner

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Re: Memory loss post surgery
« Reply #35 on: October 09, 2022, 06:45:06 am »
thank you, thank you thank you.
i am so happy and relieved I have come across this message board. I thought i was going insane.
My husband had gamma knife radiation on his acoustic neuroma about 2 yrs. ago. we noticed (the kids and I) memory loss in him and mood change. I told his doctors, but no one listened to me. he will sit and ask the same questions over and over, as if he never asked them, he can't follow a long conversation... it is very difficult. I can't have a serious conversation with him because he will forget it, he has very little short term memory. The kids will say they are going somewhere, then later he will get angry because they didn't tell him they were going (when the just said it at dinner the night before).
I am not sure what direction to go now, or quite how to help him, but at least I'm validated and I will keep looking for ways for him to improve his memory. It has been so difficult for the rest of us these past few years. I have to repeat everything.. I try to be patient. I just wait for him to remember something.. anything. or i just repeat as if it is a new conversation now. I try not to get too frustrated. but it is still difficult.
but thanks, and god bless you all in this journey...
Dana

MarlaB

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Re: Memory loss post surgery
« Reply #36 on: October 09, 2022, 08:40:31 am »
Find him a new doctor who deals in memory and cognitive function. Whatever the reason, you are noticing changes. I wish you all the best.

Marla B.

donjehle

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Re: Memory loss post surgery
« Reply #37 on: October 09, 2022, 05:02:06 pm »
I agree with MarlaB!  You need to search for a memory and cognitive function specialist in your area.  I would think that such a specialist would take your concerns very seriously and would test for memory loss and would recommend treatment.

Best wishes on you and your husband's journey!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

 


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