I haven't been on this forum for a few years now, as I wanted to try and move on with my life. Basically, I had partial resection of a large AN and the remainder GK'd. Both were done in 2009. I've had annual MRI's since, to check if the remaining bit is stable, which it has been. My most recent MRI was back in March this year, still all fine. The reason I've come back to this forum is I've had problems with my upper left shoulder blade area on my back for years, approximately 7-10. Very achy, and I've had decreased sensation in that area for years too. In the last 6 months or so, I've started to have a pins and needles, crawling, tingly sensation there, which makes its way down the side of my body. It has started to creep over to the right side too. I've been to see an orthopaedic surgeon, who said it sounds postural. He did refer on to a neurologist, to be thorough. I saw the neurologist, who I told about my AN etc. He did say it is probably postural but NF2 is potentially a possibility! So he will want an MRI of my spine. Thing is I was worried about NF2 years ago and wrote to my neurosurgeon, who put my mind at rest as he said it was highly unlikely that I have NF2. As I only have one AN and no family history. Could another AN take years to appear though? Plus do people have two AN's first and then spinal tumours appear? Can anyone offer any advice. Also my arms sometimes feet tingly, I don't know if that is anxiety though, as I am such a worrier.
Sorry for the long post,