Author Topic: Change to tinnitus--15 years post-op and 9 years post FSR.  (Read 2893 times)

MLB57

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Helloa everyone,

I posted recently on an episode of vertigo.. (Probably unrelated to my "dormant AN, at least I hope) Glad to report that stopped as abruptly as it began.. Had it over 3 weeks.. MD prescribed Meclizine 25 MGs 2 or 3 times a day but that didn't help the vertigo..But during that time and now I have an increase in tinnitus..I can actually feel as well as hear this zapping, what I would describe as like an electrical charge that swoops through the AN side of my brain..  Up to now I mostly heard and felt this occasionally as I was drifting off to sleep.  But the last few weeks I hear these episodes during the day (which I can live with) but some nights the zapping kept me awake for most of the  night.  It's almost like I can feel some electrical activity happening in my brain.  And with my eyes closed with the sharpest zaps I have "seen"  or experienced a white and blackish image like a black piece of paper with white holes in it (yes!) .  So this has upset and downright frightened me..  It is there at various degrees at different times..

Does anyone know if tinnitus can morph into this kind of sound/feeling?  I am wondering if hearing loss can deteriorate into this kind of noise..I had a 1CM removed retro sigmoid 2001, kept growing and I had 6 wks of radiation several years ago and my last MRI last April showed  shrinkage.. and next MRI due 2018..

OH and by the way, from day one after my surgery in 2001 and continues now, when I look to the left or right with my eyes I hear a slight rushing sound.. But this only happens if I purposely sift my eyes left or right but not my head.--I believe this is called gaze-evoked tinnitus..or something like that.


Any input would be appreciated.

Much thanks to all on this site..

Mary/AKA Grammy
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

MLB57

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Re: Change to tinnitus--15 years post-op and 9 years post FSR.
« Reply #1 on: May 15, 2016, 06:35:24 am »
Hi "At Bat",

Haven't called Dr Loeffler but did e-mail him but he didn't respond--could be he thought it was spam..Will try again..

Best wishes to you!


Mary
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

MLB57

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Re: Change to tinnitus--15 years post-op and 9 years post FSR.
« Reply #2 on: May 15, 2016, 03:04:03 pm »
So sorry "CityView".. don't know how I got you mixed up with who ever "At Bat" is.. LOL..

I do like the Red Sox of course--being from MA..

Regards,

Mary
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

Lizzette

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Re: Change to tinnitus--15 years post-op and 9 years post FSR.
« Reply #3 on: August 02, 2016, 11:57:59 pm »
Hello
I was also diagnosed with vertigo and put on same pills with no results then went back to ER and they gave me ear drops again with no results and lost 60% of my hearing  so finally I saw an ENT specialist who put me on steroids and in two days my hearing is back but I still need to finish the steroids while I wait on an MRI to rule out a tumor. I feel what your going thru. I had numbness, fullness, and other annoying issues but I'll take all those noises so long as my hearing is back. Im just wondering when I complete the steroids treatment will I lose 60% of my hearing again. Any answers?

 


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