Author Topic: Who has regain good balance after surgery to remove AN?  (Read 4686 times)

tincupal

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Who has regain good balance after surgery to remove AN?
« on: April 16, 2016, 05:18:06 pm »
Hello All,

I'm new to the board & was just diagnosed last Thursday. I'm leaning toward surgery to remove the AN. My main problem at this time is balance issues and disequilibrium. When my head moves to much I lose focus & then the balance goes. haven't done any sports for almost 2 months.

so my question is:

How many of you have your balance back after removal of the AN via surgery?

I ask this because most responses on the board still indicate a lot of balance issues after treatment.

Thanks, Al
11 x 4 mm AN diagnosed April 14, 2016 on right side. Some hearing loss, tinnitis, balance issues, no sports.

volleymom

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Re: Who has regain good balance after surgery to remove AN?
« Reply #1 on: April 17, 2016, 06:39:34 am »
Hi Al,
I think the more active you are, the better your balance will be after surgery. Start out by just walking alot. There are vestibular exercises that you can do to help your brain and balance once you are up and walking after the surgery. You might also need to do gaze stabilization exercises, I did for a few weeks.
I don't have perfect balance at 6 years post-op, but I can do most things that I try. I can ride a bike, cross country ski, kayak, lift weights, TRX class, Tai Chi, yoga, swim laps,and this week I tried Zumba class and did OK. Last summer I tried standup paddleboarding on smooth water and I was excited that I didn't fall off.  I work fulltime as a nurse and don't think that people notice my slightly uneven gait.
I do find that I get tired more easily with activity. I try not to walk around in the dark without a night light, because I use my eyes to go straight. I feel panic if asked to stand on a ladder to paint the ceiling or if I am standing in shallow moving water. I use a rearview mirror on my helmet for biking, so I don't have to turn my head much to see behind me.
Hope that this is encouraging to you! While you are waiting for surgery maybe you can do stationary bike or rowing. And google vestibular exercises to practice challenging your brain to balance with one balance nerve.
9mm X 16mm diagonsed in August 2009.  Retrosigmoid Nov, 2009 at OHSU in Portland, OR.
post-op had some facial nerve weakness, nearly resolved. Mild tinnitus. Left sided deafness.

bethtretrault

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Re: Who has regain good balance after surgery to remove AN?
« Reply #2 on: April 17, 2016, 11:32:46 am »
I had retrosigmoid in Nov 2015 and my balance is almost totally normal. It is more challenging to stand on one foot and walk around in the dark but other than that I am good! After LOTS of walking during recovery I am now back to taking classes at the local YMCA. I don't do any that would cause me to change position really fast but am able to do a Barre class and Pilates without any issues.  :)
beth
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015

tincupal

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Re: Who has regain good balance after surgery to remove AN?
« Reply #3 on: April 18, 2016, 09:42:04 am »
Hello volleymom & bethtretrault,

Thanks very much for your replies. This is encouraging to see people with surgery get back to somewhat a normal life. By the way - I played Pickleball yesterday for the first time in 8 weeks. wasn't too bad if I didn't run around much. hand eye coordination was pretty good. should have tried sooner. we’re playing in a tournament tomorrow so I needed to try.

Thanks again.
11 x 4 mm AN diagnosed April 14, 2016 on right side. Some hearing loss, tinnitis, balance issues, no sports.

Eddie

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Re: Who has regain good balance after surgery to remove AN?
« Reply #4 on: April 18, 2016, 10:51:42 am »
I had surgery about 4 months ago, and i would say i've gained back balance after the first month?

I'm fully back at the gym now lifting weights, and able to to run/sprint fine on the treadmill and outdoors. Definitely walk as much as you can after surgery and that'll help with the recovery process.
-July 2015 - Woke up with congested left ear and lasted about 2 weeks - then came Tinnitus
-9/16/15 - ENT doctor diagnosed with Tinnitus
-10/2/15 - MRI Scan reveals 2.4 X 2.4 x 2.2 cm AN
-12/8/15 - Surgery NYP Dr. Michael Sisti
-12/9/15 - 100% tumor removal all nerves saved :D

areles

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Re: Who has regain good balance after surgery to remove AN?
« Reply #5 on: April 18, 2016, 03:54:44 pm »
my son's balance was barely impacted at all.  he was a little off for a week or so, but and at this point (eight weeks post op) is back to normal in that regard.  he's skating, and will be able to surf once he's cleared to go back in the water.  he sometimes loses his balance for a second, but it's rare, and only for a second.  he doesn't even really have issues in the dark, from what he tells me.

his tumor was large and he's been skating for fourteen years and surfing for eight, so these things combined probably went a long way toward aiding his recovery.
22 y/o son:

2.8cm dx 12/31/15
translab (10 hours) at house clinic 2/23/16 - dr schwartz, dr miller
surgical repair of csf leak 2/27/16 - dr miller, dr chen
as of 2/28/16, still in hospital, with tentative release scheduled for 3/1/16
{indeed sprung 10:15a 3/1/16}

Neet

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Re: Who has regain good balance after surgery to remove AN?
« Reply #6 on: June 28, 2016, 09:18:39 am »
I had Gamma Knife treatment a few months ago and vertigo and balance are much improved, although Tinnitus is just as bad. Mustn't grumble!
Also I have found from the very beginning, that I am affected by sudden changes in air pressure- sudden heavy showers etc- give me the wobbles, but it passes.

Tod

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Re: Who has regain good balance after surgery to remove AN?
« Reply #7 on: June 28, 2016, 07:20:29 pm »
It was a good year before I felt my balance was really solid. Saying that, it was about seven months post surgery that I was able to juggle 3 bocce balls while descending and ascending the stairs three times each before dropping a ball. The more you walk, the more you challenge yourself and rest appropriately, the better you will be.

I started playing golf again last year after a 12 year layoff (in part because of pre-surgery balance issues) and balance is more than sound enough for that.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Greece Lover

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Re: Who has regain good balance after surgery to remove AN?
« Reply #8 on: June 29, 2016, 07:26:37 am »
I'm about seven weeks out from surgery. I'm very solid on my feet but still have trouble turning my head. It's slowly getting better. I think it's different for everyone.
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance slowly improving.
One year follow up MRI showed not tumor.  No MRI for four more years.

dredfern

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Re: Who has regain good balance after surgery to remove AN?
« Reply #9 on: June 29, 2016, 09:13:08 pm »
Al,
Sorry to hear you've got one of these too.  It's not the best news you'll ever get but I would be encouraging.  I had to wait 8 months for my surgery after being diagnosed and just finally had it a month ago.  I was, like everyone else, very apprehensive of the results.  I am an arborist by trade so spend my time high up in trees swinging on a rope with a chainsaw.  This requires a lot of balance. 

Like I said, I am 4 weeks post op and my balance is totally fine. I do have some dizziness still on rapid movements of my head but I can stand on one leg, I use a balance/wobble board and can do most tasks with my eyes closed on one leg even (such as brush my teeth).  I did make an extended effort to challenge my balance prior to surgery though with exercises and i guess my job helped too in that sense.  We're all different and some people on here have it real bad. I was lucky.  The worst thing for me now is I have a CSF leak and am waiting for another surgery.

Good luck, Dan
3.5cm Left side Acoustic neuroma
Translab' removal 1st June 2016
Very successful, no complications.

sheren

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Re: Who has regain good balance after surgery to remove AN?
« Reply #10 on: December 23, 2016, 09:26:44 am »
hi,

balance was a great deal to me as i am a dancer. i removed my tumor last feb and to be honest, my balance was so bad i had to start learning to walk again. i was losing hope but kept going for my vestibular therapies and in two weeks, i was all fine. i could walk normally, go shopping and even went out for a couple of drinks. i guess practicing your therapies and keeping active really helps(: im almost a year past the surgery and im back to dancing. good luck!
Translab surgery done on 24th february 2016 when I was 24 years old.
3.4cm tumor on the right
Dr Friedman & Giannotta of Keck Hospital USC

sharonov

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  • 1.7 X 1.3 X 1.1. Retro sigmoid at House, Schwartz
Re: Who has regain good balance after surgery to remove AN?
« Reply #11 on: December 23, 2016, 10:48:33 am »
To repeat other members:  this is highly individual.  I was never an athlete and had trouble doing Tree pose for more than 30 seconds in yoga, if that gives you an idea of my athletic level (low). But less than a week after surgery (retro-sigmoid for debulking of 1.7") I was able to walk a couple of blocks with no assistance. I feel that I need to concentrate when it's dark but I'm fine as long as I do. So, the short answer is, I was a bit of a shlub before surgery and slightly more of a shlub now.