I think the eye issue is related to facial nerve irritation. That was one of my early symptoms, some droop and dry eye. I had a round of steroids and it went away, and hasn't returned. It's kind of like throwing a stink bomb into the phone company. All sorts of communications get affected, and it clears after the smoke is gone.
May I ask which steroid and for how long? After my first week post-op, I was put on an extremely short course of low-dose methylprednisolone dose pack, which tapered down over just 5 days. I didn't notice any improvement with such a low dose.
My eye issues are slightly different, and they're very concerning. I'm not very articulate; however, I can best describe my eye issue as an "eye palsy." About 3-4 weeks post-op, I began feeling involuntary tremors which felt like they originated from the nerves/muscles directly deep in the back of my eyes. It's hard to explain, which combined with the symptoms, increases my anxiety.
It feels like my eyes cant decide between squinting or staying open. When I look in the mirror my eyes look perfectly normal and there are no visible signs of twitching, but I can feel the nerves/muscles in the back of my eyes pulsating or trembling out of control. This last for 10-15 seconds and repeats about every 4 minutes. My eyes are extremely dry as well, but I still have tears. This is why I attributed my eye issues to allergies in the beginning. Also, when I turn my head from side-to-side, left-to-right, I can hear the muscles moving! My eyes will make a sound similar to the "clicking" sound of arthritis from an arthritic knee or elbow.
I've had to cope with a constant dull headache (1 out of 10) since treatment which usually responds to ibuprofen. I have low energy and a lot of fatigue. The increased hearing loss has contributed to increased tinnitus; however, my WIDEX hearing aid with Zen is still very effective in reducing the discomfort.
My balance has declined significantly, especially if I close my eyes while standing in the shower. I also notice while I'm walking that I constantly "sway over" to the right side. I have to make a big effort to re-align myself back to the middle. It's like I'm a walking drunk in public and is very embarrassing. This "disequilibrium" didn't exist prior to GK. Thank goodness I don't have Vertigo or Dizziness.
My depression and anxiety and OCD have increased post-GK.
My main concern is getting these involuntary eye muscle/nerve tremors (which aren't visible but I can definitely feel them) under control. They only happen when I' m awake and never when I'm sleeping.
I hope it's transient.
I'm not a doctor, and the only information I can find online is in regards to "papilledema" and "hydrocephalus".
The worrier in me is concerned about Brain Necrosis or Glioblastoma, but I fully understand how minimal that risk is.
I have appointments scheduled next week with an Opthamologist and an Allergist/Immunologist, and Weight Watchers!. Perhaps I will call Dr. Sheehan's office as well and see what he thinks about my eye issues.