Author Topic: Post Op Facial Pain  (Read 2124 times)

Amandasalazar

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Post Op Facial Pain
« on: October 03, 2021, 06:00:28 pm »
Hello, I had surgery June 25 so I am a little over 3mo post op. Gross total resection. However, just this weekend I started feeling facial and jaw pain. Scares me that whatever they peeled off the facial nerve wasn’t all of it and is growing back. Anyone else experience this or have this happen to them?
2.9cm left AN, 6/25/21 removed via RS gross total resection.

Greece Lover

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Re: Post Op Facial Pain
« Reply #1 on: October 04, 2021, 09:26:24 am »
I didn't have that exactly, but I do know that the nerves grow back slowly. Often over a course of months and even years.  So, new sensations are not necessarily due to tumor recurrence.  They could be from nerve recovery/growth.

In the big picture, I really struggled with anxiety about recurrence.  Very hard to get over.  Easier said than done, but try not to assume the worst!   I wish you peace and good luck. 
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

Amandasalazar

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Re: Post Op Facial Pain
« Reply #2 on: October 04, 2021, 10:13:49 am »
I feel like this is going to be a never ending worry. Thank you for positive insight :)
2.9cm left AN, 6/25/21 removed via RS gross total resection.

Greece Lover

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Re: Post Op Facial Pain
« Reply #3 on: October 05, 2021, 08:27:12 am »
You're right, I think, that the worry never fully goes away.  But it does get better. Hang in there!
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

 


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