Tina, my hubby is 6 days out from surgery, so your post really hit home. His AN is 3 cm and his symptoms have gone far beyond the "normal" ones. Yes, he had the hearing, swallowing, balancing, memory issues, but since 2013, he has experienced what I call seizures. The doctors want to argue with me, but I WAS THERE. For the record, I'll call them "episodes," because who cares about the proper terminology?
Hubby has had 3 "episodes" about 7 months apart where he blacks out (with eyes open and set) for 3-10 minutes and always throws up...always in the middle of the night...always with no warning.
Well, we were on vacation this week & yesterday (our LAST DAY, thank goodness), hubby had that 3rd "episode" at the hotel. This time, he did a face plant on the tile floor of the bathroom, came to, but when I got him to the bed, out he went again and threw up everywhere. (POOR STAFF! It looked like a crime scene.) With fourteen stitches in the forehead, we flew home last night. Of course, we were worked into the neurosurgeon's offices this morning to see if Hubby was still a surgery candidate. SUDDENLY, the doc insisted that Hubby's "latest" symptoms were not related to the AN and is sending us to a cardiologist tomorrow. I was not happy at this change in direction, but after reading your post, I'm happy to air on the side of caution. While I trust the doctor, I also believe that sometimes we know more about the patient because we live with them.
I feel so frustrated and helpless. I see Hubby getting worse by the day. I know in my heart that the tumor is responsible because he has passed numerous heart tests with flying colors. I fear for what will happen from the surgery...and I fear what will happen if we decide to deny the care and see what happens. Neither choice is good. Either way, it looks like we are in it for the long haul. We have adopted the attitude that...It IS what it IS...and we try to accept what comes our way and find humor in it.
Today, for the first time, I had a meltdown. It felt great! Smile. After a good cry and a great pizza, I feel better. Finding friends like you who understand is so important...because you can't explain this to anyone. Thanks for sharing your story and know that I'm sending you cyber hugs.