I know you all can't answer this exactly but, I would like some in-put before, I go into CK. I spoke with the scheduling person a few days ago and now, it looks like they/Stanford people are looking at a possible earlier date for me.
When I had my radiation consultation the doctor told me mostly everything I had already read on the Internet about AN. I stayed up for months, day and night when diagnosed with this thing. I also was already on this forum before, my consultations. (both with the surgeon and the rad-doc) Oh and is it safe to continue with Fosomax if I'm going with radiation, instead of the traditional surgical approach? I know I asked the surgeon about the Fos-pill and he told me I was right in not taking it. I took one this morning as, I felt it was OK since I'm going with the CK. I hope that is right. I will try and get past the scheduling person and find that out too but if not, does anyone know about that bone building pill. There are problems with that which can be severe if having dental surgery and on that pill.
OK, can anyone tell me with a 22 mm size AN, when using the CK on it.......then after, will my balance get much worse and be permenent? What do I expect to be permenent after CK? Permenent is the "key word" here, for me. I believe it will damage what is left of my hearing on the right side, correct? (balance is important to me as, I have an extremely active life) I'm sure it is important to all of you. I live in the mountains and everything is on a slope! (my property is on a rather steep hill/mountain. I have the two extra large dogs and I was very active up until recently with the AN. (taking hikes up on thin trails with a BIG drop-off) I'm not taking those now for fear of falling off the mountains, etc. I would miss my youthful life-style as, I'm not the *sitting-type.*
I have the mega fullness in the ear, the stinging facial with tongue numbness, the tennitis, balance.....running into walls problem, bad headaches, rolling colored lines, eye twitching and almost all hearing loss on the right side.
So people, what will change for better or worse, *PERMENTLY* after CK? (or will life be left with what I have now?) From your experiences can anyone actually answer my questions?