Hi there, my name is Megan and I'm a 36yo SAHM to two boys (age 6 and 3) with a remarkably supportive husband. I was diagnosed with a 5x4x4mm AN on Friday and have spent the last few days digesting it. I live in Chicago (Evanston) and have been going to Northwestern Hospital so far.
So, my story, as an introduction to me
I began noticing in December that I could hear my heartbeat in my left ear on occasion, not tied to anything specific. Just enough to notice and be a little concerned. My initial concern was actually that it would be blood pressure! I deal with moderate to severe anxiety so I actually did very little online sleuthing to see what it could be, finding only mentions of benign tumors as a very rare possibility. So, when my annual physical appointment arrived in January, I mentioned it to my internist who just told me I'd need to see an ENT but could wait a few months for that. Well, I'm not a waiter
so I called her referral the next day and made an appointment for as soon as possible, but it wasn't for a few weeks.
Fast forward to last Monday and I went in for my hearing appointment. Great hearing, apparently, but given my one-sided symptoms, the audiologist said she would see if the tinnitus specialist in the office was available. To my good luck, he was immediately so I met with him. He was actually initially unimpressed because my symptoms were not affecting my everyday life. However, I explained that I was not so much concerned with the symptoms but rather with the underlying cause of the symptoms; and I am so glad I pushed. He agreed that I should have a CT scan and an MRI, as well as blood work to rule out anemia.
I was able to schedule both of the scans for the next day (Tuesday, I said I'm not a waiter!!) and was able to schedule my follow-up with him on Friday. This original doctor is not a specialist in AN and has referred me to Dr. Micco for an appointment this Thursday.
At this point, I'm completely unsure of what to do, so I'm hoping this appointment will help.
Does anyone know of Dr. Micco? I've seen lots of references to Drs. Weit and Battista and, based on those, I've made an appointment with Dr. Battista for the beginning of March for a second opinion. My concern is that my coverage doesn't appear to include them, but I'm not ruling them out just on that.
I'm honestly petrified of surgery...mostly of surgical complications. But unsure about radiation And I'm quite anxious about my appointment on Thursday. I worry that there may be something else wrong, something worse, I guess. However, I do want to hear an expert's input so I'm looking forward to that.
Anyway, wanted to introduce myself and get my story out there. It took a while to get up the guts to post on here, although I've been reading since Friday when my doctor recommended this site as the best place to learn about AN.
I'm open to any advice and honestly so glad to have found this forum.