"I will prevail," I love that.
I am having four hours of balance testing on March 10, and then my medical team will create a customized, specific vestibular therapy for me. They are going to work with the Physical Therapist who comes to my town twice a week, and then he's going to work with me. I live in a tiny town in the middle of nowhere, so I haven't had any therapy yet. After reading many posts, I am sure the therapy will work.
I tried the suggestions that Clarice provided me and failed horribly (but I'll keep trying). That is hard! What's really a bummer is that I was a professional dancer for years and you would think that I could pull it together on keeping my balance; I was a pirouetting Queen! But I'm totally lost with this 24/7 dizziness. I am counting on the therapy working so well I'll be able to reopen my bakery in April. Keep your fingers crossed for me.
My eyelid weight is working out pretty well. It's not too heavy so I have to concentrate to close my eye, but that way my eyelid doesn't droop and obstruct my vision. He tightened my lower lid so now my drops and ointment don't run out of my eye. I'm very, very happy and grateful.
I did start taking my anti-anxiety medication that I took for PTSD last Monday. I'm not anywhere near as critical has I was before participating in a two-year study with a VA doc, but now that I know the medication will not change who I am or make me feel high, I'm willing to take it before my anxiety wins.
They say to be thankful for everything that has happened to you because you will see how your experience can help others--but you can help yourself too. Thankfully I learned how my PTSD can creep back into my day-to-day life, and about a year before my surgery I noticed some symptoms, probably as a way to deal with the Trigeminal Neuralgia pain. Post-surgery my recovery has been difficult, mostly because of the 24/7 dizziness, so the creeping continues. I am grateful because I've already learned that the medication works and I don't have to distrust it. I would like to do a bit of talk therapy, but unfortunately that's not available where I live. I learned great coping skills with the VA I'll lean on.
Thanks for letting me share. I hope sharing my experience is helpful to others.