Author Topic: 5 year CK anniversary  (Read 3048 times)

Tisha

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5 year CK anniversary
« on: March 16, 2014, 02:57:47 pm »
Hi,

Just for an FYI, I thought I'd let everyone know I received my 5 year Post CK MRI and Audiogram.  The last was 2 years ago.  It has shrunk just a tad more from 1.5 x 1.0 x 1.0 to 1.5 x .9 x .9.  My hearing has stayed exactly the same.  Low frequencies all normal, starts the ski slop at 2000 moderate loss to 8000 mod-severe loss there.   It was better than this pre-CK, but I had SHL with swelling 6 weeks afterwards.  It came back with steroids but never quite as good in the high frequencies...but still decent.  I started wearing a HA in that ear to help my non-AN ear which is severe deaf in all frequencies (virus related).

I have the new fancy schmancy HA's that work together for speech in noise.  I hear better than normal hearing people sometimes in noise resaurants, etc.  LOL!  Anyway..hope all is well. 
1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

Jim Scott

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Re: 5 year CK anniversary
« Reply #1 on: March 16, 2014, 03:46:20 pm »
Hi, Tisha ~


Welcome back and congratulations on the 5-year MRI results!  I'm pleased to learn that your hearing, although compromised, is still serviceable with a hearing aid.   Thanks for the update.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tisha

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Re: 5 year CK anniversary
« Reply #2 on: March 16, 2014, 06:19:58 pm »
Thanks Jim.  I like your byline at the bottom of your posts!
1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

PaulW

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Re: 5 year CK anniversary
« Reply #3 on: March 16, 2014, 08:17:15 pm »
Can I ask what the fancy schmancy hearing aid is?
Great to hear that your hearing is still reasonable after 5 years
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

Tisha

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Re: 5 year CK anniversary
« Reply #4 on: March 17, 2014, 03:09:02 am »
Hi Paul.  I purchased a Siemens Pure Micon 7 Mi.  I tried the Phonak Audeos and the another popular brand.  These ere the best for my ers.  Another good on out of my price range wad Oticon Alta's. 
1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys