I called my ophthalmologist’s office to inquire about scleral lenses. They do have experience with them, but required me to see the doctor first. It had been about 6 months since my last “dye test,” and he said the cornea of my affected eye was in really good shape and looked similar to my good eye. I thought to myself, “that’s because I put in drops 1-2x an hour!” He said he didn’t think I needed the scleral lens, but cleared me to get one if I still wanted.
So over the past month, I’ve been weaning myself off the drops. It was really hard, and I had to keep reminding myself that even though my eye felt dry, or hot, or painful, my eye was in good shape. I started setting time limits of 1 hour, then 2 hours, etc. I got myself to 4 hours without drops and went back to the doctor for a re-check. It still looks good, and I don’t have to go back for 6 months! So I’m now waiting at least 4 hours, then waiting until I feel the need—not automatically every 4 hours. I’m still taping at night, and I have a punctual plug, but I guess I’m doing better than I realized!