Hi thanks everyone for your words of encouragement and thanks arizonajack for the images. I think mine does look like the 6 month and 12 month image compared to the pre image, ie bigger and more spread out and closer to the brainstem.
I'm in the UK and although I got the CD I got no report with it as that eventually goes to the doc, who will take an age to contact me.
The previous scan CD I had in April was unreadable and I checked it again and it still had no clear image. In fact it makes you think if that if that had been your first MRI they may not have picked it up! But I've not got a copy of the first scan which did pick it up. That was without contrast, so it worked with no gandolinium!
But this time (same hospital and scanner but different radiographer and again no contrast) I found an image exactly comparable to the print out that the oncology doc gave me of the scan with contrast before treatment in Dec 12. Even without contrast on this new scan you can see the AN and there is a tool at the top of the scan image you can drag to measure with. To be sure I printed out the images same size and overlayed them and it does look bigger and closer to the brainstem.
I expect I spent more time taking an accurate measurement than the docs would to be honest!
I think that for a treatment to be considered a fail it is the 2 year MRI showing a 2 to 3 mm increase, which happened to someone I've spoken to in the UK who had surgery at 3 years after GK, poor her. I think about 2/ 3rds of people get no increase or get shrinkage? Trust me to be in the smaller increase group :0(
I now have to wait to get through to the neurosurgeon's dept who I saw a my initial consultation back in Oct 12, who I've not spoken to since as he referred me to oncology. Oncology refer you back to the neurosurgeon in my region of the UK so it all gets a bit complicated and drawn out.
But as my symptoms have taken another turn for the worse in December especially the full ear and tinnitus which makes the balance worse it seems, I hope its not going through more swelling! (or Growth!)
Would be interesting to know the percentage of us who get swelling of around 2mm plus, who then do get shrinkage again back to pre treatment size. Does anyone have that information?
Hope you are all well today.