Author Topic: Does the fullness go away after surgury?  (Read 3184 times)

grace

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Does the fullness go away after surgury?
« on: January 24, 2014, 11:27:58 am »
I would like to know what the outcomes are? I hear some come out deaf, w/ headaches ... Does the surgry take away the fullnes or brain fog feeling, is that one of the main benefits? How many get their balance back and how long is it to regain balance for most of you??? Thanks,Grace  Because or the vertigo, I am considering going to see an AN specialist....

Jim Scott

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Re: Does the fullness go away after surgury?
« Reply #1 on: January 24, 2014, 03:19:25 pm »
I would like to know what the outcomes are? I hear some come out deaf, w/ headaches ... Does the surgry take away the fullnes or brain fog feeling, is that one of the main benefits? How many get their balance back and how long is it to regain balance for most of you???  Because or the vertigo, I am considering going to see an AN specialist. 

Thanks, Grace

Hi, Grace ~

As you probably realize, every AN surgery patient's situation is somewhat unique and there is no 'standard' outcome to AN surgery.

Yes, some AN surgery patients experience post-op headaches and imbalance issues and most lose hearing in the affected ear if it has not disappeared by the time of the surgery due to tumor growth infringing on the hearing nerve.  However, some have relatively excellent outcomes.

I cannot speak for all AN patients but I can tell you from reading thousands of posts on this site (member since 2006) that most post-op issues, including balance, do resolve.  Sometimes it takes a few years, sometimes a few months or weeks.  Occasionally facial reanimation surgery is necessary and balance therapies are sometimes employed, depending on the patient's situation. For SSD (Single Side Deafness) there are BAHA (Bone Anchored Hearing Aids) and other devices to assist hearing if the patient desires such aids (many do).   

As you likely realize, Grace, this site and this forums are intended as a support resource for AN patients (surgical and radiation).  Most AN patients that have a full recovery eventually cease posting as they move on with their lives and no longer need the support we offer.  That is understandable and expected.  Those with ongoing post-op/radiation issues will naturally post here seeking information, advice and support.  That is the purpose of the forums. 

Like every AN patient, you want some solid ideas about what your AN surgery will bring and are concerned about life-altering complications.  That, too, is understandable and expected.  Unfortunately, that kind of assurance is simply not realistic because there are so many variables involved with AN surgery, including size of the tumor, it's exact location and the surgeon's skill and experience.  As you can see from reading the posts, some AN patients do very well (I'm one) others do O.K. but experience some post-op issues that eventually resolve and some have real complications that can be daunting.  Most eventually end up adjusting and coping quite well.  I trust that if you opt for AN surgery, you'll be among them.

Jim     
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

kcarloy

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Re: Does the fullness go away after surgury?
« Reply #2 on: January 24, 2014, 10:03:27 pm »
Jim, I can't thank you enough for frequently reinforcing the differing recoveries, and the common usage of the forum.
Grace, I had translab, am 55yrs, and 6wks post, have had a smooth wonderful recovery. I am on the verge of being better than before surgery. I worked hard preop on daily long walks (in the dark, snow, rain, dirt rd after work in the dark wearing a headlamp). I found a thread on the forum about what may give the best recovery and started working on it! Every day I am thankful!

grace

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Re: Does the fullness go away after surgury?
« Reply #3 on: January 26, 2014, 08:41:38 am »
Thanks for the message. Can you give me that link. I have not been going for walks due to this vertigo and the ice. I am a fraid o fall and hate the cold. My bones hurt. I have had this for years and always fought thru it . I was able to make it affordable and go to FL four 3 months a yr and not fight it which made me healthier. Due to the AN I did not go these past 2 yrs. I want to  go jsut so I can be more active and warm. I have a 95 degree fever now with  a pounding headache and my hearing has gotten much worse since the vertigo. In just 4 weeks so much has changed with the AN symptoms that I think it may have grown. I am hoping that with less stress and rest I can get it to shrink also w/ some alternative med.  The AN is so small yet causing all this I do not understand. I wish I lived closer to house , these MD's are not as Expperienced but are in CT. MY problem is I live away in the country- all treatments are an hour-2 hours a way and if if there is all this post p treatment then I would have to have some help driving. My husband's new job will fire him if he misses any time. That is the rules. So with him bringing in most ofthe money now we need the job. I hope your recovery isperfect. Was you AN large, did you get vertigo, loss of hearing??? What kind of headaches are you experiencing if any. I have a hx of migraines so I am afrais of the surgery sue to the thought of any worse headaches. Thanks, Grace

kcarloy

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Re: Does the fullness go away after surgury?
« Reply #4 on: January 27, 2014, 09:17:59 am »
The first 2 wks after surgery I had a mild headache a few times, fixed with tylenol, none since (almost 7wks out)