Author Topic: Florida Recommendations & Philadelphia Experience  (Read 2310 times)

bruceschulman

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Florida Recommendations & Philadelphia Experience
« on: June 20, 2013, 03:05:32 pm »
Hello folks,

This is the first time I have visited your site and am just overwhelmed by the openness of all who participate. 

I just moved to Southwest FL from Philadelphia, for the past 2 ½ years I have been seeing Dr Kevin Judy from Jefferson Hospital in Philadelphia.  I have been diagnosed with an AN in the left ear 5X10X4 with no signs of growth.  I travel to Philly next month for my hearing test, MRI’s and doctor visit; as of last year Dr. Judy has endorsed W&W.  As of two days ago I started to experience a fullness in my ear on the right side (seems strange, have no idea if it’s related to the AN).

What I was hoping is to hear from ex patients of Dr. Judy and speak about their results and dealing with Dr Judy.

I was also hoping to receive recommendations for an appropriate facility and doctor in southwest Florida.

Any help is greatly appreciated.

Best to all,

Bruce

arizonajack

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Re: Florida Recommendations & Philadelphia Experience
« Reply #1 on: June 20, 2013, 09:08:15 pm »
Welcome to the club that nobody wants to be a member of.  ;D

There are ANA support groups in Florida. You can contact their leaders for information about local providers:

Ft. Lauderdale
 
Leader: Nanci Heinmiller
561-391-2341
hnanci@aol.com
 
Leader: Gina Napoles
561-865-5133
geomar1966@hotmail.com
 
Jacksonville
 
Leader: Joan Vanderbilt
904-287-8132
joanvanderbilt@gmail.com
 
Co-Leader: Julie Schiener
904-704-8052
jschiener@comcast.net
 
Sarasota
 
Leader: David Puzzo
813-480-5679
secgen11@yahoo.com

The ANA physician directory lists several in Florida that you can check out:

Siviero Agazzi, M.D., M.B.A.
Simon I Angeli, M.D.
Mark W. Augspurger, M.D.
Howard C. Chandler, M.D.
Douglas W. Johnson, M.D., F.A.C.R.
Max B. Medary, M.D.
Jacques J. Morcos, M.D.
Michael R. Olson, M.D., Ph.D.
Sonja L. Schoeppel, M.D.
Fred F. Telischi, M.E.E., M.D., F.A.C.S.
Arnold A. Zeal, M.D., F.A.C.S.

If you joined ANA you can find live links to their info at:

http://anausa.org/index.php/medical-resources/physicians-directory/214-physician-directory-by-state
 
Google acoustic neuroma Florida or acoustic neuroma your city and you'll find resources to investigate.

And here's the results of a search of our forum for any reference to Florida:

http://www.anausa.org/smf/index.php?action=search2

You can read what others have discussed.
« Last Edit: June 20, 2013, 09:12:02 pm by arizonajack »
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Nannybee

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Re: Florida Recommendations & Philadelphia Experience
« Reply #2 on: June 20, 2013, 09:32:40 pm »
Hi Bruce, I haven't been to Jefferson but can advise you that I had an absolutely horrible experience last week with Dr. Ruckenstein at Penn.
AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

chloes mema

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Re: Florida Recommendations & Philadelphia Experience
« Reply #3 on: July 02, 2013, 03:30:27 pm »
If you're near Tampa, Dr. Bartels is supposedly the best in this area.  I had CK with him & Dr. Greenberg May 2012 & am doing great.

Karen
Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

 


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