Thank you so much for taking the time to write me back. I admit, I was completely shocked to hear about her diagnosis. She called to get some advice about what to do, and as a postie, I was able to tell her what to expect. She was really relieved to talk about it.
When I got off the phone, I told my wife, "what the heck is going on genetically on that side of the family?", then I remembered 5% of AN's are NF2. We never discussed this with my neurologist, we only watched the MRI's for 2 years and when it was time, had my surgery. But, it just seemed too coincidental, and I was wondering if their are cases where someone is NF2, does not know about it, has an AN, and at some point later the second one shows up on the other side. That would be a kick in the nose, to be sure, and my empathy for others sure has skyrocketed over the past few years.