You wrote: "doc. removed the 7-10th cranial nerves hence.....what would an entirely new one grow on?"
The 7th cranial nerve is the facial nerve. Are you sure that one was removed? If not removed, the facial nerve remains as a starting point for a new AN.
My second AN showed on MRI 17 years after the first one was removed Translab, but, it's likely to have been growing several years with it's presence unknown.
I'm not certain, but believe it's normal to have schwann cells with the myelin sheath covering nerves. It's just with AN, the schwann cells multiply and build up. There are too many.
One does not have to have bilateral ANs for an NF-2 Dx, but, eventually, such is the case.
The biopsy results will be interesting, but, I think not definitive
for an NF-2 Dx.
before manifesting with mild hearing loss and also, dizziness which came in spells at first.
I am wondering, from the NFII folks what appeared first?
I had a left AN removed in 1990, in 1998 found out it had returned, the doc's weren't sure if 1.they left a cell or two behind the first time or 2. if I grew an entirely new one in the same spot......which seems less likely to me as the first time the doc. removed the 7-10th cranial nerves hence.....what would an entirely new one grow on? I spent years worring about being NF II and had basically put it from my mind the last couple of years as nothing new had "appeared" to indicate I have it........BUT a couple of weeks ago I had what appeared to be a cyst removed from my face......when the doctor cut it open he told me it looked like it might be a neurofibroma!....awaiting the biopsy results.
I had a spinal MRI about two years ago for another reason, all clear as well as a head MRI about 4 years ago all clear.
I do not have any relatives with NFII that I am aware of however my father's family comes from Ireland and in years gone health care wasn't that good and such things would not have been talked about.