I'm terrified, for a strange new reason.
I have apparently had a favorable outcome at my disability hearing (started for unrelated reasons to the cochlear schwannoma/hearing loss, but the schwannoma/hearing loss certainly helped the case). In a few months I'm likely to be officially on disability. But until then I don't have access to Medicare or the like.
And the ringing seems to be more frequent, louder, and I get sensations of fullness and strain on that side of my face nearly constantly. How can something the size of a grain of rice wreak so much havok? In my frightened state it's not hard to imagine that the tumor might be getting bigger, and at present I have to wait for Medicare approval and coverage to get another MRI. It's been roughly a year and I feel the symptoms have gotten worse.
I know there's charity programs out there, but its so exhausting and out of my reach (I've tried to some extent, but so much seemed to depend on Medicare access when I made inquiries locally) that I'm in a very stressful wait-and-see period.
I guess I just need assurance. Or hope. Or something I don't even know yet.