Author Topic: Who recently posted 2 NIH articles about GK preserving hearing better than "W&W"  (Read 2444 times)

jsanders1379

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I found these articles very thought-provoking, as I'm in the watch & wait mode right now...I'm wondering how you find these articles? Just search the NIH website or what? thanks again...
Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver

arizonajack

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A search of the NIH website brought up several results for Gamma Knife. What you are looking for might be in there.

http://search2.google.cit.nih.gov/search?site=NIH_Master&client=NIHNEW_frontend&proxystylesheet=NIHNEW_frontend&output=xml_no_dtd&filter=0&getfields=*&proxyreload=1&q=gamma+knife&btnG.x=0&btnG.y=0

And then I found the two articles posted by PaulW in another thread:

http://www.anausa.org/smf/index.php?topic=18262.0;topicseen

« Last Edit: January 23, 2013, 12:27:27 pm by arizonajack »
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

skipg

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I posted this 1st in radiation choices then saw this "GK preserving hearing better than WW". In my case I would have to agree.

I am 2 mos post proton treatment and happy and satisfied with my choice. See my proton journal under radiation.....but....I do have one big regret. I did all the research and went to the symposium in Cincy. I also consulted with a CK doctor here along with a neurosurgeon and a neurotologist. A total of 6 doctors from radiation and surgery backgrounds. They all agreed that WW was good for me since I had good hearing and my AN had not grown in 6 mos. Then from June of 2011 to July of 2012 my AN doubled in size and I lost serviceable hearing in my AN ear. Many other symptoms came on and my tumor needed to be dealt with. It is easy to look back and 2nd guess, but I wish I would have gone with GK immediately instead of ww for 18 mos.  But who would have thought. After all, I did my research and scoured this forum and had consensus from the experts. I rolled the dice and came up short.  Life is a matter of choices and maybe my experience will help someone else. Still a good life and much to be thankful for.
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

jsanders1379

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Thanks for your story-seems whenever I throw the dice (medically),I always lose...which makes the decision that much harder...
Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver