Author Topic: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear  (Read 18003 times)

ewchisek

  • Jr. Member
  • **
  • Posts: 71
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #30 on: January 28, 2013, 07:43:34 pm »
So good to hear from you Sam! Have been thinking and praying for you! I hope everything continues to get better. Rest up and you will be home with your girls in no time!
Elizabeth

Glenda

  • Full Member
  • ***
  • Posts: 154
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #31 on: January 28, 2013, 08:39:15 pm »
Hi Sam!
So good to hear from you!  Sounds like you are doing well!  I still have numbness in my tongue also but it should go away.  So glad you are doing well!! You will need lots of rest so let your family pamper you for awhile!  Welcome to the postie world  :)
Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #32 on: February 05, 2013, 05:11:49 pm »
thanks :)

getting there but had a horific night of pain Monday & tuesday i developed discharge from my L ear .... now its a clear constant drip.  Am on antibiotics and ear drops but seeing my local specialist tomorrow when i get my stitches out.  Has anyone else had this?
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

PaulW

  • Hero Member
  • *****
  • Posts: 769
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #33 on: February 05, 2013, 08:05:07 pm »
It sounds like a CSF leak. (brain fluid). Its not an unusual complication after AN surgery, but is potentially problematic too.
You may want to do something about this sooner rather than later. CSF leaks can lead to fairly serious infections amongst other things.
Worth getting it checked out fairly quickly I would think. 


10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #34 on: February 05, 2013, 10:08:05 pm »
i'm seeing local specialist at 11.30am tomorrow, and just txt to update my surgeon. ....heres hoping it can stop naturally
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #35 on: February 06, 2013, 12:08:09 am »
called surgeon ... back to auckland for 2nd surgery  >:(
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

ewchisek

  • Jr. Member
  • **
  • Posts: 71
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #36 on: February 06, 2013, 06:44:32 am »
Praying for you...

Glenda

  • Full Member
  • ***
  • Posts: 154
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #37 on: February 06, 2013, 06:57:15 pm »
So sorry you had this happen.  I had a CSF leak too but healed and did not have to have surgery.  Praying all goes well!! Please let us know how you are doing when you are able!!

Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: Diagnosed with AN 2.5cm+ in New Zealand ... surgery Jan 25 2013
« Reply #38 on: February 06, 2013, 09:53:16 pm »
The leaking has slowed at the momment... I'm hoping for it to stop ... have until monday arvo when surgery is scheduled ... any tips on how it may stop? So pleased to hear yours stopped Glenda was it constant?
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

Glenda

  • Full Member
  • ***
  • Posts: 154
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #39 on: February 07, 2013, 07:07:59 pm »
No, mine was through the nose and it was occasional drips.  They kept getting less and less until they stopped.  Thank goodness!  They monitored it for a few days and decided it was healing itself.  I hope yours clears up on its own too!  Praying for you!

Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #40 on: February 07, 2013, 09:08:34 pm »
well the dropping out the ear has stopped but last night i had a few out the nose which has now slowed to a few down the throat every now and then ... i have managed to have the surgery put through the public system next friday (7days) so maybe by then it will have stopped.  Surgeon said that as its two weeks after initial surgery that it started then the chances of it healing are slim - hope to prove him that in my case it can though !
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

Glenda

  • Full Member
  • ***
  • Posts: 154
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #41 on: February 10, 2013, 09:47:22 pm »
I hope you indeed prove the Dr wrong!  Will pray you do so!  Hang in there!!

Hugs (())
Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #42 on: February 13, 2013, 09:00:56 pm »
Had a bad spot last night where my brain fluid is too low and causing sever pain :( could hardly sleep so pleased to be admitted now just one sleep and surgery at 7am then I can stop injesting CSF yay.

Prays and thoughts appreciative for this second surgery xx
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

Sam-NewZealand

  • New Member
  • *
  • Posts: 43
    • My Blog : Sams Snippets
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #43 on: February 14, 2013, 10:08:02 pm »
Out of surgery . Went fab feel great just have a sore jaw xx now bring me that icecream and jelly nurses! Xx
MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

millie

  • Sr. Member
  • ****
  • Posts: 423
Re: AN 2.5cm+ in New Zealand ... surgery Jan 25 2013 CSF leaking out ear
« Reply #44 on: February 17, 2013, 08:35:57 pm »
So glad to hear your surgery went well-now take your time to recover and heal.  Do you have family to help with the children? You need to rest and be gentle on yourself in early recovery.  I am four months out of trans-lab and I can attest to "It gets better."  Praying for you, Sam!  Millie