My Personal Gamma Knife Treatment Journal started June 10, 2012

[millie]

Great news, Mike! It is so good to hear of your progress.  God bless us every one with health and peace of heart in this new year.  Mil

[MDemisay]

Hello Fellow ANgels,

Today I am getting super weird left sided neck twitches has anyone had this? I am starting to get frieked!   

Hope this day is going better for all of you!

Mike

[MDemisay]

Dear ANgels and newbies,

Distressing news! I just saw a picture of my wife and I taken( June 13, 2012)  at the retirement party of a collegue of mine on 2 nights after my Gamma Knife treatment, in it I look somewhat tired but smiling broadly IRV was freshly dead ! I recall I had a slight headache.....

.Fast forward to present day now (January 30,2013) 2:30 in the afternoon. At this moment when I try to smile only my right uneffected side responds there is some drooping present on my left side. I compare the picture to my face and the results are quite noticeable now. I am starting to feel myself get depressed. Is there anything I can do? All this facial  twitchiness distracted me, sorry friends to bring you down.

Praying now to restore my smile and my mood!

Mike

[arizonajack]

Mike, I wonder if you sustained some damage to the facial nerve on that side at some point.

Might be worth addressing with your doctors.

And you might be a candidate for therapy:

https://duckduckgo.com/?q=facial+nerve+damage+therapy

[MDemisay]

Dear Jack,

I know it's has been quite a while and I'm not looking forward to taking more medicine but this getting to me. Now when my left side of my face twitches it twitches in several spotsabove the eye brow ' above and to the left of the nose, my upper left lip quivers and my chin quivers a bit. I'm going to call Dr.Sisti and see what he's got to say. It was really bad this morning with all of them quivering at once!

Mike 

[MDemisay]

Hi Guys,

I know it's been qiute a while since I posted just thought I'd bring you up to date on things going on in my recovery as it is!

Well for 1 thing, I have been having on again off again twitches and Dr. Sisti says it's time for another CT scan with and without contrast. S0 he scheduled me for another (which I have yet to schedule)..

Then I can see him again and see what he has to say about my crooked smile!

Got to go for now wish me good luck!

Mike

[mesafinn]

Mike:  As I inform my thinking on treatment, I read your journal and appreciate your candor, your enthusiasm, your hope, and your vulnerability.

Keep us posted and here's hoping that the face twitches stop, the smile returns, and the heart rejoices.

Peace--

P.

[MDemisay]

Dear mesafinn and others following along,


Thank you for your appreciative kind words! Honestly,to say I've been through a lot (with my brain) in my lifetime would be an understatement......However, it is nothing compared with those going through metastatic brain cancer.....I mistakenly wandered on to one of their websites in 2004 briefly. The result of an over eager audiologist in announcing to me that I had a brain tumor. All those months later, I found out that it was the benign kind!

But, all in all, I cannot complain as my life has been full (and I intend to continue to enjoy as much of it as possible after all I'm only 56) but, please forgive me if I tend to gush! I am just so grateful to be among people (the ANA Forum members and my NYC ANA Support Group) and those of you (like you mesafinn) who truly appreciate me with all of my foibles.

Who knew that simply providing a blog of my journey so far would prove to be so mutually helpful?

Mike

[millie]

Mike-I have not been on line a lot and just read of your recent experiences.  My face twitched a bit here and there, but it doesn't now .  I am a little lopsided, but I am going to start facial therapy mid April. Maybe Dr. Sisti will prescribe it for you.
I appreciated your comment  about  doctors who  eagerly bestow the brain tumor bomb...it sure is a lot to handle, and you have had more than your share.
I'm praying for your positive progress, Mike...Millie   

[millie]

I forgot to say thank you for your support after my own surgery.  I remember being in a really really tough place on day 5 or 6 and I came onto this site, and you were there.  You told me to hang on and it would get better.
That was such a help to me!  Prayers and Hugs...Mil

[MDemisay]

Hi All,

Tuesday, June 11th,2013 is fast approaching, as you know it will be my 1st anniversary of my much fearfully  anticipated Gamma Knife treatment. I have been reluctant to schedule another CT scan with and without contrast......as I am fearful about what they might find. Just gird your loins Demisay (I tell myself), I know I have been comforting most of you with my posts......But right now, I feel just a little scared given my track record with medical tests as you can tell below.

I have a lot of other things on my plate right now,(my dad"s health is failing) I really don't need another negative result. I am trying to be compliant with my Neurosugical follow-up, but it can be hard at times.

Would it be all right to ask for prayers? I know I haven't been following as I should I promise to get better at that to show you just how much you all mean to me.....

Yours truly,

Michael

PS. Facially, I am a little out of sink on the left side of my face, so I try not to smile as broadly as before. My face doesn't droop, however. The facial twitching is unnerving but I don't notice it when I sleep.

[Jim Scott]

Mike ~

No need to apologize.  Your apprehension regarding your upcoming 1-year CT scan is perfectly normal but probably unwarranted.

We recognize and appreciate your concern for other AN patients and realize that, like all of us, you have a life beyond your AN treatment and this website. 

That noted, be assured that you'll be in my prayers (for a no-growth' CT scan result) and those of many others.  "Courage is fear that has said its prayers". ~ Dorothy Bernard (silent film actress)


Jim

[cindyjarrett]

Michael,

Consider it done.  I will be praying for you.  You have always been such an inspiration to so many of us. 

Cindy

[jsanders1379]

Good Luck!!

[MDemisay]

Dear All,

Well, I've scheduled it for my anniversary date....Here goes nothing mostly now I'm afraid of my shadow! I don't know why this is such a big ******* deal! But it helps to have asked for prayers. Thanks very much everybody!   At this time tomorrow (4:30) I will begin.....


Michael