Author Topic: 18 months post Cyberknife  (Read 2601 times)

6pick

  • Full Member
  • ***
  • Posts: 124
  • Light a candle rather than curse the darkness.
18 months post Cyberknife
« on: May 03, 2012, 12:09:41 pm »
…and all is as well as possible. I've now graduated to the once-per-year-in-the-tube schedule.

My alien shrunk a little bit in length from 25mm to 23mm. I'll have to fix that in the profile.

The Audiologist said my hearing hasn't changed since we attacked this thing. At first, that bummed me, then I realized that it also means it hasn't gotten any worse. I'm trying a meta-physical approach - "restore my hearing, restore my hearing…" maybe it's helping  ;)
5/21/10 diagnosis: Left side AN: size 25X17; tinnitus with variable volume, garbled word recognition, disequilibrium.

10/11/10 CK treatment@Stanford; Drs. Chang, Gibbs, Lieberson size 25 x 20 x 15 mm

4/24/12 size 23 X 20 X 15 no hearing change

Tumbleweed

  • Hero Member
  • *****
  • Posts: 1052
Re: 18 months post Cyberknife
« Reply #1 on: May 18, 2012, 01:08:55 pm »
Congrats, 6pick!

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • To conquer fear is the beginning of wisdom
Re: 18 months post Cyberknife
« Reply #2 on: May 18, 2012, 02:14:23 pm »
Hi, Mark ~

Thanks for the positive update.  As for chanting "restore my hearing" as therapy, let us know if that works for you so we can all try it.  ;)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10820
  • I am a success story!
Re: 18 months post Cyberknife
« Reply #3 on: May 18, 2012, 05:09:54 pm »
Good luck with that meta-physical approach; let us know if it works  ;)

Sounds like things are going well for you.  Thanks for the update.

Good to see you back here,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7447
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: 18 months post Cyberknife
« Reply #4 on: May 18, 2012, 07:39:25 pm »
Congrats 6Pick ... and as someone who is 6 years post CK.... continued wellness wishes to you! :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"