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Author Topic: arhhhhh, its just an ear thing!!!!  (Read 16500 times)

Suu

  • Sr. Member
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  • Posts: 407
  • Better out than in.
Re: arhhhhh, its just an ear thing!!!!
« Reply #30 on: April 24, 2012, 12:43:15 am »
Hiya Lou

Just a quick post to see how you're coping now?

Hugs,
Suu xxoo
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Lou

  • Jr. Member
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  • Posts: 82
Re: arhhhhh, its just an ear thing!!!!
« Reply #31 on: April 24, 2012, 12:30:53 pm »
Hi Suu, thank you for asking. Yes coping much better thank you. Emergency flight to Pennsylvania booked for Thursday, Ears of course not happy, but will deal with that, first MRI check up cancelled, due to emergency trip. LOL, but am okay, will post to you all soon
Mandy x
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''The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be''

Bilateral facial nerve neuromas
8mm left side and 7mm right side. diagnosed late 2011.Watch and Wait Staus -  Currently at
the mercy of the English NHS system

Kathleen_Mc

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Re: arhhhhh, its just an ear thing!!!!
« Reply #32 on: April 26, 2012, 11:25:44 pm »
ignorance is bliss ain't it!
My reply to anyone that tries to diminish AN's to "just an ear thing"......"then why'd they crack my cranium to get it out"?
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1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

pjb

  • Hero Member
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  • Posts: 682
  • Sad to say now a W & W
Re: arhhhhh, its just an ear thing!!!!
« Reply #33 on: April 27, 2012, 07:45:34 am »
Quote from: Kathleen_Mc on April 26, 2012, 11:25:44 pm
ignorance is bliss ain't it!
My reply to anyone that tries to diminish AN's to "just an ear thing"......"then why'd they crack my cranium to get it out"?

Just keep saying we have 12 CRANIAL nerves and the 8th surgery was performed on....

Best Wishes,
Logged
Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.
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