Author Topic: facial paralysis  (Read 21012 times)

Wendy

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Eye care
« Reply #15 on: February 28, 2005, 08:30:00 pm »
I use Lacrilube about 4 times a day and my eye feels great but it causes my vision to be blurry. Only noticable if I try to do something like cross-stitch....I have tried other eye drops but they just don't work as well.

Anything else like Lacrilube that doesn't cause the blurriness?????

Have you tried Celluvisc, Pembo?  It is more lubricant than the other drops, as the visc[ous] should indicate.  I tried the gel in a tube,Genteal, but didn't like it much.  The Lacrilube or Refresh PM is soothing but does create that slick.  But ask your ophthalmologist, it is worth the visit, our eyes are two only....Mine today explained why he recommended non preservative for me in my present situation.  I had thought he just liked non preservative as a policy.  Apparently anyone who has few tears, or fewer tears than optimum (normal) would be advised to use non preservative artificial tears because there is less liquid (tears) already in the eyes to dilute the artificial with preservatives(which are fine for most people, he said).  A person who uses artificial eye lubrication three or more times a day, according to him, should use a type which has no preservative, since the preservative  could irritate the eye.The Genteal Gel for severe dry eye says"preservative free in the eye" which does not mean non preservative.  One has to be careful of labels and be sure one knows the conventions.  So do check to see what else you might use, check with a good, communicative ophthalmologist.  I had one, a woman, who refused to communicate but charged plenty to insert punctum plugs. At last I switched, and I have a much better working relationship with the current doctor and his office--it is worth the trouble I went through to switch.  Good luck to you.
Wendy
p.s. I'm still learning all the bells and whistles of this new site.  Apparently I put my post in the quotation from you, Pembo--sorry.  Now I've tried to fix it. W
« Last Edit: February 28, 2005, 08:42:57 pm by Wendy »

Wendy

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Eye care
« Reply #16 on: February 28, 2005, 08:34:38 pm »
Pembo,
MikeC wrote a post on this topic suggesting an ointment which is preservative free.  I do not know it, but it might be worth a try.
Wendy

lifeisgood

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Re: facial paralysis/eye issues
« Reply #17 on: February 28, 2005, 11:17:50 pm »
HI,
I think it's extremely important to see an eye specialist as soon as possible after surgery to have a baseline and to access any damage to the eye or cornea.  I initially used drops daily for about 2 months along with Lacrilube at night.  I stopped using the drops daily but religiously use either lacrilube or Genteal at night.  I am coming up on one year post surgery and notice that my eye does not bother me like it did 6 months ago.  I did visit the eye doc 6 months later to ensure that there wasn't any damage to the cornea.

Regarding tears, my eye on the affected side doesn't produce tears yet but I know that it will lift.  My eye doc said that the tears are there, the "window washer" just isn't working efficiently yet.
I have noticed A LOT of twitching around my eye along with slight movement above the eye.  I am taking this as a good sign.  Still working on closing the eye or moving the opposite eyebrow upward WITHOUT moving the right side of my mouth upward.
I have about 90% of my face back and am hopeful regarding getting the remainder back.

This has certainly been a humbling experience for me.  To anyone who is feeling down about their face, find a support group in your area, or start one.
It helps!
Take care!
Mary in Naperville :)
3.4cm AN surgically removed 3/04
by Dr. Wiet and Kazan at Hinsdale Hospital in Illinois.
Translab approach

lifeisgood

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Re: facial paralysis/eye issues
« Reply #18 on: February 28, 2005, 11:19:05 pm »
HI,
I think it's extremely important to see an eye specialist as soon as possible after surgery to have a baseline and to access any damage to the eye or cornea.  I initially used drops daily for about 2 months along with Lacrilube at night.  I stopped using the drops daily but religiously use either lacrilube or Genteal at night.  I am coming up on one year post surgery and notice that my eye does not bother me like it did 6 months ago.  I did visit the eye doc 6 months later to ensure that there wasn't any damage to the cornea.

Regarding tears, my eye on the affected side doesn't produce tears yet but I know that it will lift.  My eye doc said that the tears are there, the "window washer" just isn't working efficiently yet.
I have noticed A LOT of twitching around my eye along with slight movement above the eye.  I am taking this as a good sign.  Still working on closing the eye or moving the opposite eyebrow upward WITHOUT moving the right side of my mouth upward.
I have about 90% of my face back and am hopeful regarding getting the remainder back.

This has certainly been a humbling experience for me.  To anyone who is feeling down about their face, find a support group in your area, or start one.
It helps!
Take care!
Mary in Naperville :)
3.4cm AN surgically removed 3/04
by Dr. Wiet and Kazan at Hinsdale Hospital in Illinois.
Translab approach

Pembo

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Re: facial paralysis
« Reply #19 on: March 01, 2005, 02:33:46 pm »
Thank you all. I have been seeing an opthamologist since my time in the hospital. He doesn't seem to knowlegable about eye drops and such. He just gives me samples of Systane after I told him I can't use those. (they didn't really work). He didn't say anything when I told him I was using Lacrilube day and night.

I will try Celluvisc. I am tired of the "oil slick" and the blurriness.

I have learned more from the internet than all the so called experts combined. :)
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

nancyann

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Re: facial paralysis
« Reply #20 on: October 13, 2006, 03:44:49 pm »
hi guys - i'm new to computers, trying to figure out how to get in - hope this is right.  anyway, i had AN surgery with subsequent facial paralysis 6/06; am scheduled for a hypoglossal anastamosis (7 - 12 jump, partial) 11/9, and would like to hear from those of you who've had this done - are you glad you did it, etc.   i'm pretty nervous about it, you know, once bitten twice shy.  thanks, nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Windsong

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Re: facial paralysis
« Reply #21 on: October 13, 2006, 06:49:38 pm »
 this was an opthamologist as a part of your team for your treatment>>>>>>>>>?

did you report him to somebody somewhere when he /she did not respond to your use of lacribube?


good to see you here...and am wishing you tons of good wishes and being well...
windsong



Thank you all. I have been seeing an opthamologist since my time in the hospital. He doesn't seem to knowlegable about eye drops and such. He just gives me samples of Systane after I told him I can't use those. (they didn't really work). He didn't say anything when I told him I was using Lacrilube day and night.

I will try Celluvisc. I am tired of the "oil slick" and the blurriness.

I have learned more from the internet than all the so called experts combined. :)
« Last Edit: October 29, 2006, 10:01:07 am by Windsong »