Author Topic: FSR Starting tomorrow at MCV  (Read 4416 times)

Tod

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FSR Starting tomorrow at MCV
« on: January 02, 2012, 07:37:08 pm »
And now it is finally my time in the machine. I start tomorrow at 4pm. We'll see how this goes.

Wish me luck,

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

HisHands

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Re: FSR Starting tomorrow at MCV
« Reply #1 on: January 02, 2012, 08:19:11 pm »
Saying a prayer for you and trusting you will have good results!!  Emma
Emma
1.5 x 1.5 x 2cm AN in left ear;  MRI 11/16/2011;  GK on 12/16/11

...In Your hand is power and might and Your hand gives strength to all.... I Chronicles 29:12

mindyandy

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Re: FSR Starting tomorrow at MCV
« Reply #2 on: January 03, 2012, 07:27:54 am »
Good luck Tod. Keep us posted.
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: FSR Starting tomorrow at MCV
« Reply #3 on: January 03, 2012, 02:09:20 pm »
Tod ~

As a veteran of 26 FSR sessions (that were very effective) I can say that it shouldn't be too arduous.  Well, it wasn't in my case.  I drove to and from each session - a 60-mile round trip - and never experienced any negative side-effects.  I trust you'll have an equally positive FSR experience with similar (good) results. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: FSR Starting tomorrow at MCV
« Reply #4 on: January 03, 2012, 03:48:50 pm »
Best wishes, Tod .....

Thoughts and prayers for uneventful treatments and good results!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Brewers7

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Re: FSR Starting tomorrow at MCV
« Reply #5 on: January 04, 2012, 12:02:55 pm »
Said a prayer for you!
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

Tod

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Re: FSR Starting tomorrow at MCV
« Reply #6 on: January 07, 2012, 09:57:29 am »
Thanks for the support my friends.  The first four sessions have gone pretty easily. My neurosurgeon was there for the first session and made a point of spending a few minutes with me afterwards.

The whole process is awfully convenient for me. Perhaps too convenient as I don't have much time to process things. After the first appointment, which my wife accompanied me to, the rest have been scheduled weekdays at 10 am.  It is about a leisurely 10 minute walk from my office. So I leave just after 9:30, check in about 9:45 and am called back before 10. It takes a couple minutes to lay down on the table and get mask fastened in place and to get comfortable. By 10:15 I am up and putting my glasses and BAHA back on. I stop and get a cup of coffee in the main hospital  and I am back at the office shortly after 10:30.

I am feeling pretty tired at this point, but I started the week tired and have been fighting some kind of low-level infection all week. That has been the only real downside. Hopefully that will pass soon.

Four down, 24 sessions to go.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Barb909

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Re: FSR Starting tomorrow at MCV
« Reply #7 on: January 07, 2012, 12:38:42 pm »
Tod, thank you so much for your update, and I am happy to hear that is almost too easy for you! Do you go 28 days in a row, weekends also? Hope you can rest big-time this weekend.

I am W & W, and at the symposium was advised by 3 out of 4 docs to do FSR, the same 28 day timeframe. Next MRI in March, so we will see.

Anyway, good luck to you, will be sending good vibes, and I hope that EASY continues to be the describing word for this experience for you!

Barb
Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

CHD63

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Re: FSR Starting tomorrow at MCV
« Reply #8 on: January 07, 2012, 07:48:27 pm »
Tod .....

Glad to hear the "so far, so good" report!!  Keep it up.

Prayers continue.  Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Tod

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Re: FSR Starting tomorrow at MCV
« Reply #9 on: January 07, 2012, 09:02:56 pm »
Barb, Yes, I get weekends off. As I understand the theory, if there is at least 18 hours between treatments, the normal tissue can heal itself of any damage done by these low doses. The radiation is of course cumulative in its effects on the tumor, so the weekends off, while providing important down time for the staff and equipment, are probably beneficial for the patient as well.  Of course, I am not a doctor and I could be completely wrong.

Good luck with your MRI and treatment.

Clarice, thanks always for the support,

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.