Author Topic: 5 YEARS POST OP  (Read 2017 times)

jazzfunkanne

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5 YEARS POST OP
« on: October 31, 2011, 05:40:34 pm »
Hi am nearly 5 years post op, what is the protol call regarding scans if they left abit of tumour behind , thanks
over 4.5cm AN removed dec 06

CHD63

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Re: 5 YEARS POST OP
« Reply #1 on: October 31, 2011, 06:17:16 pm »
My guess is the answers will be all over the spectrum, depending upon each patient and doctor and situation.

I am assuming you have had yearly MRIs since surgery to this point.  I am not a doctor, but if the remaining bit of tumor has not changed since your surgery five years ago, the likelihood of it suddenly beginning to grow now is quite remote.  From what I could gather at the June, 2011 ANA Symposium in Cincinnati, if a tumor is going to grow again, it is most likely to occur within the first 10 years ...... with the greatest number occurring within 5 years.

I was told that my tumor was totally removed in February, 2008.  However, in February, 2011 the MRI showed a 1.3 cm recurrent tumor.  This regrowth was removed in May, 2011.  Dr. Friedman said I did not need an MRI for a year and if it was clear, another in 4 years (5 years post op).  If that one was also clear then there would be no need for any more MRIs because of my AN.

Obviously, if a patient is experiencing new symptoms post-op, further MRIs should be done as a precaution ...... at any point in time.

Just my two cents.  Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

jazzfunkanne

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Re: 5 YEARS POST OP
« Reply #2 on: November 01, 2011, 06:14:45 am »
Thanks for that, yes i have had scans since the removal i just worry about regrowth, i would have been happier getting scanned up too 10 years as i know someone who had regrowth at 6 years but i suppose we are all different x
over 4.5cm AN removed dec 06

leapyrtwins

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Re: 5 YEARS POST OP
« Reply #3 on: November 02, 2011, 01:13:08 pm »
Congrats on the 5 yr milestone, Anne!!!   ;D

Sorry, I don't know the answer to your question (my AN was removed entirely).

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways