I saw Dr Mason today. I liked him a lot - and one of the things I liked best was that he was very upfront that I may possibly have NF2. He wanted a spinal MRI done (to look for other meningiomas) and wants to refer me to the NF2 clinic at MGH as they have the experience with NF2 and he doesn't. (He said he's referred one patient every 3 or 4 years for NF2!) He said if it were not for the suspicion that I may have NF2, he'd have me wait and watch, with another brain MRI in 6 months. He didn't particularly like the MRI that I had done at my local hospital though - said the slices weren't as thin as he would have liked!
He also said that he thinks I could benefit from a hearing aid, so I'm going to have an evaluation for that in October. My HMO won't cover even $0.01 of the cost of a hearing aid though
My appointment with Dr McKenna is next week - it'll be interesting to hear what he says! He's listed as being "closely affiliated" with the NF2 clinic so that means I don't have to make yet another appointment
So far, I've been very happy with the doctors I've seen in relation to this. They've all taken me seriously, they've all been good about admitting the limits of their knowledge.