Author Topic: We have it tough sometimes, but...  (Read 3713 times)

Sue

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We have it tough sometimes, but...
« on: April 18, 2011, 06:00:17 pm »
...a neighbor of mine has been diagnosed with inoperable brain cancer.  He is a middle aged man, with a wife and a step-daughter.  It's so heart breaking.  Please keep Steve in your thoughts and prayers.  They have a tough road ahead.  :'(

Sue in Vancouver, WA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Lynn Mc

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Re: We have it tough sometimes, but...
« Reply #1 on: April 19, 2011, 06:13:16 am »
This really puts our lives into prospective.......
Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

CHD63

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Re: We have it tough sometimes, but...
« Reply #2 on: April 19, 2011, 07:02:53 am »
Sue .....

Many prayers for your neighbor, Steve.  My husband's sister died of brain cancer at age 52.  It is a horrible disease.  Makes me sad all over again when I hear someone has been diagnosed with it.

Let us know how things are going for both Steve and the family ..... because it truly does affect the whole family.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: We have it tough sometimes, but...
« Reply #3 on: April 19, 2011, 07:58:33 am »
Sue -

I always think of situations like this when I say I was "lucky" to be given an acoustic neuroma.

Diagnoses like this is are so heartbreaking  :'(

Prayers to Steve and his family.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: We have it tough sometimes, but...
« Reply #4 on: April 19, 2011, 08:25:50 am »
Sue ~

Thanks for the reminder that AN patients are, indeed, 'lucky' in the sense that we do not have a fatal condition.  When I found out that my large AN was 'benign' - not malignant - I was, obviously, very relieved.  My wife, possibly more so. 

My prayers for your neighbor, Steve and my thanks to you, Sue, for offering us this reminder that although we often have to struggle with AN-related issues and they can be life-altering for some, at least we can survive the tumor and live to see better days, that others, like  your neighbor, Steve, will not.

Jim     
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Sue

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Re: We have it tough sometimes, but...
« Reply #5 on: April 19, 2011, 07:27:49 pm »
Thank you for your kind and loving thoughts.   It is appreciated..

Sue in Vancouver
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Larry

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Re: We have it tough sometimes, but...
« Reply #6 on: April 20, 2011, 01:23:36 am »
Life can be so unfair can't it.

pass on the thoughts from all of down under to your neighbour


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Kaybo

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Re: We have it tough sometimes, but...
« Reply #7 on: April 20, 2011, 06:41:52 am »
Will definitely add them to my list...I certainly believe in the power of prayer!



Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

yardtick

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Re: We have it tough sometimes, but...
« Reply #8 on: April 21, 2011, 01:04:25 pm »
Sue,

I too just received news of a family friend who was diagnosed with brain cancer.  Sam is my age 51.  He is going through a very nasty divorce as well. This is a coincidence, but he lost his father 12 hours before my father-in-law passed to lung cancer as well. 

Both Steve and Sam are in my prayers.

Anne Marie



 
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: We have it tough sometimes, but...
« Reply #9 on: April 21, 2011, 03:57:08 pm »
Wow, sometimes when it rains it not only pours, but there's a severe thunderstorm  :'(

Sorry to hear about Sam, Anne Marie.  I'll add him to my prayers.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lauralynn

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Re: We have it tough sometimes, but...
« Reply #10 on: April 25, 2011, 01:35:45 pm »
Hello Sue,

I will add Steve and his family to my prayer list.  Anne Marie...I will add Sam also.  As AN survivors we do go through many struggles but we do have to remember, When we think we have it bad...someone out there has it worse.  Please keep us posted.

God Bless,

Laura Lynn
4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

Soundy

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Re: We have it tough sometimes, but...
« Reply #11 on: April 28, 2011, 12:22:05 pm »
A friend , Lisa ,  lost her mom to brain cancer Monday ...

will keep Sam and Steve in my prayers ...
keep Lisa and her 2 young children in yours at this time of their loss ...
her kids are in kindergarten and 3rd grade ... they are lost ... the past year has been
hard on the whole family but the kids break your heart ...
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery