Author Topic: Loss of Taste Buds Post CK  (Read 2107 times)

JLR

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Loss of Taste Buds Post CK
« on: January 13, 2011, 05:18:41 pm »
Hi All, I am about 6 weeks post CK, and have noticed this week that I have a (bit)  loss of taste buds.  The other morning I was having toast and jam (red Rasp) and as Im eating realized it had zero flavor.. I did a bit of googling and all the sites said it was temporary.  And I can add I have been having headaches..real bangers..that only last a few seconds ..this happens a few times a day..and my hair texture has also changed. I'm guessing this is all the radiation doing its thing to my AN. AND the tinnitus is getting even louder..Any other symptons I'm likely to get? Thanks for the feedback. Joan

TJ

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  • 1.2 cm AN right side, CK November 2010
Re: Loss of Taste Buds Post CK
« Reply #1 on: January 13, 2011, 06:25:47 pm »
JLR

Yes my taste changed also after CK, it did only last for a couple of weeks.  My tinnitus also went a lot higher, some days it is loud and some days back to what it was.  I am almost two months past CK.  And yes I had headaches for about two weeks straight but they have stopped.

TJ

ernie h

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Re: Loss of Taste Buds Post CK
« Reply #2 on: January 19, 2011, 02:50:46 pm »
jlr, very common issue be patient it will come back good luck, ernie.
ernie.r side ana removed aug 07 by dr peter black and doctor quinton gopen.brigham and womens hosp boston mass.

Ric

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Re: Loss of Taste Buds Post CK
« Reply #3 on: July 07, 2021, 05:55:47 pm »
Hello,
I am about 12-13 years post CK for my AN.  I have been experiencing loss of taste and numbness in the mouth for year.  It use to last a week or so then go away, but as time has past it is now pretty much permanent.  The feeling I get is as if there is fuzz in my mouth over all my teeth/gums and tongue.  As if my teeth are all wearing little sweaters. Over time, the sensation lasted longer and longer and the time free of it got shorter and shorter.  Now I am beginning to have pain in my teeth.  I am wondering if this is from the CK i had.  My doctor claimed he was not familiar with this being a side effect, however I highly suspect it is a side effect of radiation.  It is becoming very uncomfortable. 

mwatto

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Re: Loss of Taste Buds Post CK
« Reply #4 on: July 20, 2021, 12:01:11 am »
Hi Ric I get this every now and again along with earache, sometimes a pain behind ears or back throat. Two and a half years post CK. I think its trigeminal related. My doctor said try low dose 5 mg Amitryptaline for nerve pain at night - but I find swishing with mouthwash helps (maybe its the menthol) also find if I keep inflammation down eg boswellia, curcumin, D3  and melatonin then everything reverts to normal - I have (almost) no tinnitus no other issues. I also take palmitoylethanomide (PEA) a natural compound which no script required but works as anti inflammatory and analgesic. I have also tried Bromelain and Honopure and Bio 30. Chewing a crisp apple also helps me!
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.

 


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