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Author Topic: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!  (Read 13149 times)

Nickittynic

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #15 on: November 27, 2010, 04:09:54 am »
HOORAY! Congrats! Here's hoping for continued improvement! I can only imagine how thrilling it must be after such a long time!
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

deheisel11

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #16 on: November 27, 2010, 09:16:19 am »
You have been a comfort to many people on this site.  Good things happen to good people!  Congrats!
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translab surgery of 2.6cm neuroma, right side, by Dr. Welling at Ohio State, 6-18-10.  BAHA base placed on same day.  Facial paralysis. Gold weight 7-14-10.

Tumbleweed

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #17 on: November 27, 2010, 12:59:34 pm »
Kay, I am so happy for you! And it gives us all hope that we, too, might regain some of our lost function at some point in the future. Thank you for your inspiring report.

Sincerely,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

cindyj

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #18 on: November 27, 2010, 02:10:23 pm »
Wow!  How exciting for you, Kaybo!  So very happy for you!  Talk about patience paying off :)

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

kraynok2

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #19 on: November 27, 2010, 08:28:40 pm »
What great news Kay!  You have been an inspiration to so many people.  I am so happy for you.  Sandy
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arkansasfarmgirl

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #20 on: November 29, 2010, 01:17:31 pm »
Woohoo!!!!!!!!!!
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ombrerose4

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #21 on: November 29, 2010, 01:24:29 pm »
OMG!!! How exciting for you.  I am so happy for you, this shows all of us that good things do happen! :) :) :) :) :) :) :) :) :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Lizard

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #22 on: November 29, 2010, 08:45:13 pm »
Weeeeeee!!!!  Yippee!!!!!
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

moe

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #23 on: November 29, 2010, 11:12:52 pm »
YAY! Just saw this. Congrats and keep on moving that mouth!
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Mickey

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #24 on: November 30, 2010, 04:33:20 pm »
Thats great news! It`s such a nice thing to hear stuff like this. When I go to my ANANJ meetings and see such improvements from the periods before it gives a good feeling for all we share in being AN survivors. Best wishes, Mickey
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SML

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #25 on: November 30, 2010, 04:38:00 pm »
Awesome news! We are VERY happy for you!

Scarlett & Rich
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

swhite

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #26 on: November 30, 2010, 05:49:35 pm »
Congratulations and thanks for sharing.  This gives us all hope and something I've always prayed for.  So happy for you.
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Retrosigmoid 8/27/09 undiagnosed and suddenly; no symptoms prior; approx. 4cmx2cmx2cm; right-side, facial paralysis/weakness, SSD and tinnitus. Baha surgery 11/9/10.
Gamma Knife 8/11/14 at UPMC w/Dr. Lunsford after regrowth detected June 2014

rosie_p

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #27 on: January 04, 2011, 01:30:10 am »
 :D  I am all smiles for you! This is really amazing news. Congratulations!
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On the journey of my life....

3cm tumor removal July/06 Baltimore, MD
SSD and Facial Paralysis (Right Side) Closed mouth smile? Check. Open mouth smile.....
Thankful for my Surgeons as well as my Physical Therapist!
Began Neuromuscular Retraining in July/09

rayden1

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #28 on: February 07, 2011, 02:07:31 pm »
Hi Kay

Am new so late reply. So happy for you. Have read all about you. You are an inspiration. May you continue to have more improvements.

Annx
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Glenda

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Re: After 15 YEARS & 2 surgeries...MY FACE IS MOVING!!
« Reply #29 on: February 07, 2011, 09:47:54 pm »
Kay,

I am just reading this as I don't log in very often anymore....life is so very busy!  I am absolutely THRILLED for you!  You know you have always been such an inspiration to me!  Good things do happen to good people!  No one deserves "good" more than you!!!  I hope the "girlies" are doing well  :D

Glenda
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Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness
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