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Author Topic: Cindys Nerve Ablaision Experience....11/2010  (Read 57715 times)

bell

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #135 on: March 10, 2011, 10:51:34 am »
Mei Mei,
   So glad you are getting some relief.
  Does your myfacial stud, Michael, have any referrals to other therapists throughout the US? Just a long shot if he knows of a good link to find good therapists?
  Thanks,
 Bell
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Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #136 on: March 10, 2011, 03:52:20 pm »
They sure are studs and they're all booked up till the 18th, then I have two appts a week after that.   I won't see them till the 18th.   Let me google Myofacial Release PT and see what they say.     Just came back from a neurosurgeon recommended by my Sleep doctor.   He said he never does retrosigmoid and I had such a small tumor.   He said like Dr. Friedman in HEI that he would have done Middle Fossa and preserved my hearing.   He felt really badly.    He recommended cutting the three damaged nerves with the Plastic surgeon at Georgetown and then he would do surgery to pack my skull over the Titanium mesh so there would be protection of the Dura.   He said this has been done since World War II.  He also said taking out the mesh now is not recommended because there are many holes in the mesh and the brain has grown through it now.   It's been 14 months.

Will search google for you and post.
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #137 on: March 10, 2011, 03:56:55 pm »
I forgot to ask where you live, but here is a start:


http://www.google.com/search?q=Myofacial+Release+Therapists

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #138 on: April 19, 2011, 10:47:42 am »
Hello friends.....I have been doing ok and started walking more.....Sunday i decided to see if i could run....Not such a good idea....i am back to square one w/ head pain stiff neck heavy head no balance.....lesson learned ......Do not over do! ::)
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #139 on: April 19, 2011, 09:37:45 pm »
Cindy ,
Please go to Myofacial Release Therapy.

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #140 on: April 20, 2011, 01:10:11 am »
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #141 on: April 20, 2011, 11:45:20 am »
Going to give it a try MeiMei.....Have to go to primary care to get referral...
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #142 on: April 20, 2011, 06:07:10 pm »
ARGH!!!!   I hate referrals.   I thought we were going on that trip to an island with a doctor we share and doesn't need referrals!
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #143 on: April 22, 2011, 02:31:18 pm »
My primary is quick anyway...have an appt on Monday, ;D
I am ready for that trip to the white sandy beach...and the masues.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #144 on: April 22, 2011, 03:56:20 pm »
I'm  so glad that you're going on Monday.   That was quick.   At Georgetown there's a waiting list.  These guys are in high demand.

On my first visit he removed the block on the side of my neck and as soon as he did it, I fell asleep and started babbling in my sleep  I heard Michael's voice and woke up.   Then I went home and went upstairs for a nap and slept from 1:30 to 7:30.   It was such a wonderful sleep.   I was sleepy all the next day.   It just shows how much tension was stored up in my body.

Can't wait to start hearing your comments.

Mei Mei
Logged
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh
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