Author Topic: Johns Hopkins Headache Clinic  (Read 17998 times)

Mei Mei

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Johns Hopkins Headache Clinic
« on: October 14, 2010, 06:07:21 pm »
I went to the Johns Hopkins Headache Clinic this morning for a second opinion on my postsurgical daily headaches that I've been having since January.   The doctor said to discontinue taking all meds, that they were the cause of my headaches and to come back in 6 weeks for a follow up.   I am very hesitant to do this.  He said it would be hard to do this at first but to do it.  He offered no help for the pain to get through it.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #1 on: October 15, 2010, 12:36:17 pm »
I think that would depend on what exactly your on did he specify what to take and what not to take?
I know too many tylenlol cause rebound headachs and other narcotic pain reliever will do the same..percocette,vicodin
will cause headaches.
Did he tell you to stop the new med your on?
I am surprised he did not tell you what you could take for the pain.
Hugs!keep us posted
Cindy
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #2 on: October 15, 2010, 01:19:37 pm »
He told me to sweat it out through the headache and to be tough and I frankly just can't do that.  They are just too excruciatingly painful.   I thought they were going to help me like offer me Botox.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #3 on: October 15, 2010, 04:10:19 pm »
did you ask about the botox?
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #4 on: October 16, 2010, 06:33:31 am »
No, I was so traumatized from the ride up there on 95 that I was still recovering from the ride and finding the Headache Clinic.  I thought I would never get there.   Then I was shocked that he was telling me to get off my headache meds cold turkey and to sweat it out.   I felt so disappointed.   I will look for his email address and try to email him about this and the fact that I have sleep apnea which causes headaches and whether I should do a repeat sleep apnea test.   He was supposed to look at my sleep apnea test records which are in the hospital records.

Hope you're having a good weekend.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #5 on: October 16, 2010, 10:50:43 am »
Definately found out the hard way ...if you do not ask ...you will probly not recieve...call him up!
I had to tell my Dr. about gabepenton and ask for referal for nerve blocks....i would still be suffering more so then today if i had not spoken up.
Fight for your right to be pain free! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #6 on: October 16, 2010, 01:15:40 pm »
I will.  I did a search on him and he is so new there, he is not mentioned on the Johns Hopkins website, but on the Mt Sinai website.   I guess I got a resident. 

My dog came down with a massive case of the fleas and all of us are getting bitten badly.   The exterminator is coming on Tuesday...not soon enough.

Itch Itch,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #7 on: October 16, 2010, 01:45:05 pm »
Oh fllees bite!!!!!!!!!I am allergic and get giant welts from them....my son is allergic to any thing w/ fur or feathers so we have no fllees.....just reptiles and amphibians......2 tree frogs....golden geko and of course Malibu the bearded dragon.
I hope you can get hold of JHH and let them kno you are NOT happy....they work for you..you pay them....tell them you have done your research and want to try the botox....thats why you are seeing them...Thats why you were "refered" to them..if they refuse...tell them you will spend your money on a Dr. that will help you not make you suffer.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #8 on: October 16, 2010, 02:05:20 pm »
Thanks, Cindy.   I don't think I am going back to Hopkins.   They just give you junior residents.

Right now I am combing my dog and rubbing myself with lotion.

Itch Itch,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #9 on: October 16, 2010, 02:48:36 pm »
Tired from lack of sleep....Eyes are burnng...muscles spasing..neck killing from 4 shots....stressed from ALL of it...major anxiety attack today...grrrrrr.
Grrrrr,Grrrrrrr
Cindy ::)
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #10 on: October 16, 2010, 03:38:56 pm »
I know what you mean.  I get them suddenly when I'm out and wished I were home to take a shower to escape the feeling ... It's such an awful feeling that I don't want to describe it.   These daily headaches are overwhelming and you have to keep up with life as head of the family cause everybody is depending on you.   Sometimes you just want give up run away to an island in the sun with nothing to think about.   

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Johns Hopkins Headache Clinic
« Reply #11 on: October 16, 2010, 03:53:58 pm »
Island???Did somebody say Island???Lets Go!!!! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #12 on: October 16, 2010, 03:59:38 pm »
I'm game...anything to get away from this nightmare.   I just don't want to take my headaches with me.   Hope that doesn't happen.   Are there some nice people that will serve us? ;D
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Lizard

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Re: Johns Hopkins Headache Clinic
« Reply #13 on: October 18, 2010, 12:07:07 pm »
Sounds great I'm in....we just need to find us a cute and caring Dr to take with us : )  I'm about at my end with these Dr's!  Grrr!
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Mei Mei

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Re: Johns Hopkins Headache Clinic
« Reply #14 on: October 18, 2010, 12:56:02 pm »
Sounds good to me.  I'll be good about sharing him!   ;D

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

 


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