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Author Topic: Update on GramaSuby!  (Read 19465 times)

cindyj

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Update on GramaSuby!
« on: September 30, 2010, 02:02:26 pm »
Hi, all!  Just heard from Sue's son, Jason.  He reports that Sue is in recovery and the surgery went well.  As we know the next few days don't count ;), but I'll pass on info as I hear it from him.

I know she is very grateful to all of you here for the support she has received!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: Update on GramaSuby!
« Reply #1 on: September 30, 2010, 02:15:55 pm »
Cindy ~

 Prayers answered, again.  This is really superb news...thanks for sharing it!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tod

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Re: Update on GramaSuby!
« Reply #2 on: September 30, 2010, 07:16:30 pm »
Great news! Good to hear....thanks for the update.

tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

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BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

skamper

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Re: Update on GramaSuby!
« Reply #3 on: September 30, 2010, 07:39:42 pm »
Awesome news again!  Please keep us updated, I was thinking of her all day today. 
Best wishes for a speedy recovery coming her way!
Susan
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Diagnosed 12-09
AN right side 2.3 x 2.6 x 1.9
97% balance loss, minimal hearing loss
Surgery 4-2-10 at Methodist Hospital, Dr. Long and Moore
1.5 cm tumor left on 7 nerve.  Gamma knife 1-2013

leapyrtwins

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Re: Update on GramaSuby!
« Reply #4 on: September 30, 2010, 07:43:45 pm »
Thanks for the update, Cindy.

Prayers going out to Sue for a swift, uneventful recovery.

She'll be back here as a postie before we know it.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Update on GramaSuby!
« Reply #5 on: September 30, 2010, 07:56:49 pm »
What great news!  Thanks for the update, Cindy! 

Hope those first few days go by quickly so she'll be back on her feet in no time!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Lizard

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Re: Update on GramaSuby!
« Reply #6 on: October 01, 2010, 10:46:21 am »
Thank you for the update, great to hear she is doing well.
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
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CHD63

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Re: Update on GramaSuby!
« Reply #7 on: October 01, 2010, 04:29:10 pm »
That's the kind of news we like to hear.  Thanks for letting us know.  Many prayers continue for the next few days, especially.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

michelle d.

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Re: Update on GramaSuby!
« Reply #8 on: October 01, 2010, 05:58:35 pm »
Yeah! So glad everything went well....the next couple of weeks are slow but the hardest part is done! Prayers are with you....michelle d.
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Acoustic Neuroma on right side--removed Nov. 13th, 2009 @ Strong Hospital, Rochester, NY....Translab.   50 years old

cindyj

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Re: Update on GramaSuby!
« Reply #9 on: October 04, 2010, 07:34:10 am »
Well, things were moving along ok for Sue, til yesterday.  Her son said that she had been acting "out of it" but had been off the morphine for a couple of days. They found her walking down the hall alone (sleepwalking, they assumed).  She apparently then became very agitated and was put back in ICU.  The doctor told Jason this morning that he's seen this before and that it's possibly a meningitis infection?  But not positive at this point.  So, please keep her in your thoughts and prayers.  I'll let you know when I hear other news.

Thanks,

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Lizard

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Re: Update on GramaSuby!
« Reply #10 on: October 04, 2010, 10:37:34 am »
Thanks cindy, I will keep her in my thoughts, but I know I was quite agitated from the steriods I was on so it could be related to that for sure.  Hopefully they have been able to figure out what happened.
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jim Scott

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Re: Update on GramaSuby!
« Reply #11 on: October 04, 2010, 03:19:30 pm »
Cindy ~

Another round of thanks and appreciation for providing us with an update on Sue.  I'm sorry that it has some downbeat news but I trust that the underlying cause of Sues' sleepwalking/agitation will quickly be found and positively addressed and that her recovery can keep moving forward.  She'll be in my thoughts and prayers and the prayers of many others, I'm sure.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jackie

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Re: Update on GramaSuby!
« Reply #12 on: October 04, 2010, 04:28:34 pm »
Continued prayers and Blessings for fast healing going out to dear GrammaSuby, from Oregon. Thanks cindy for the update........
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

CHD63

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Re: Update on GramaSuby!
« Reply #13 on: October 05, 2010, 07:51:03 am »
Cindy, thanks for letting us know about Sue.  Hoping and praying this is a result of steroids or medication and not infection.

Renewed prayers for Sue.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

cindyj

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Re: Update on GramaSuby!
« Reply #14 on: October 06, 2010, 06:36:23 am »
Ok, things are back on the right path to recovery for Sue now!  No infection, thankfully.  It may have been the steroids, Liz - we all know how awful they are, but it sounded way beyond the "normal" accounts we've had here.  Perhaps she had a particularly bad experience due to interaction w/ other meds she has to take or some strange reaction with her chemistry?  At any rate, they are talking of her coming home by tomorrow - very good sign for sure!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings
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