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Author Topic: Capt Deb cancer update  (Read 42765 times)

opp2

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Re: Capt Deb cancer update
« Reply #15 on: September 03, 2010, 09:18:35 pm »
You know Deb, I know you've been through it all, yet you keep on fighting. I wish you all the best in your on going journey. You certainly have run the gammut, or should I say walked the plank. There is little I can say or do to make it better for you, but know that I am thinking of you, wishing the best for you, and yes, praying for you too. I say this because I am a believer in the human spirit above all else. I believe we all impact each other no matter where we are. I hope my positive energy meets yours.

Nikki
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

tenai98

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Re: Capt Deb cancer update
« Reply #16 on: September 04, 2010, 05:41:20 am »
Deb
you can add me to the prayer warriors...
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

pjb

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Re: Capt Deb cancer update
« Reply #17 on: September 04, 2010, 08:50:36 am »
Just wanted to say you are in my prayers and if you go to Vegas praying you will win the Jackpot you deserve it you have helped so many of us...and also made us laugh when we were down...

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

free2be

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Re: Capt Deb cancer update
« Reply #18 on: September 04, 2010, 09:00:20 pm »
Deb,

Thoughts and prayers are coming your way. Keep up the great attitude!

Connie
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Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Palace

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Re: Capt Deb cancer update
« Reply #19 on: September 04, 2010, 10:11:12 pm »
Hello Deb,


I'm here to help "cheer for you."  

The woman who tunes my piano went through somewhat your very own story and lately.  She is doing very well, I'm pleased to report.

I've made true friends on this forum and some very nice people come out of the woodwork in difficult times.

Even "love has blossomed" off this forum although my lips are sealed yet, my AN tumor isn't.  My Acoustic Neuroma tumor is under control.

My next MRI is due by the end of October or early November.

You are experienced and get the best treatment available.  You were always good to me and I remember you well.  I think of you often.



All my best thoughts as usual,



Palace
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22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness

Syl

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Re: Capt Deb cancer update
« Reply #20 on: September 04, 2010, 11:20:27 pm »
Capt Deb,

I will keep you in my prayers.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

nancyann

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Re: Capt Deb cancer update
« Reply #21 on: September 05, 2010, 12:40:46 am »
Capt. Deb, You are always in my thoughts
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

ppearl214

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Re: Capt Deb cancer update
« Reply #22 on: September 05, 2010, 05:54:35 am »
Capt

You KNOW how I feel.......  :-*  :-*  :-*  :-*

Will phone later!

xoxo
Your cursed cruise director
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Brendalu

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Re: Capt Deb cancer update
« Reply #23 on: September 05, 2010, 07:52:13 am »
Wow....I am way behind.  First, you are in my thoughts and prayers.  Second, I know that you have the right attitude to beat this.  Your decision to go off the mountain to have it taken care of is a good one.  As a twenty four year survivor of the Big C, I know that you will be around for at least another 30 plus years giving all kinds of advice and caricatures!
One thing that did me a lot of good as I was fighting IT was a session I took in anger therapy...MD Anderson offered it.  We yelled and screamed and threw things, but we also drew pictures of what we thought it looked like and how we could wipe it.  As  artist you are I would love to see your renditions of said evil twin !  Go get'tem and keep us posted...we love and care about you.

Love and hugs,
Brendalu
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Rich56

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Re: Capt Deb cancer update
« Reply #24 on: September 05, 2010, 09:55:52 am »
Capt. Deb, you have certainly had your share of “Bull----“.

We’re glad you are going “off the mountain” as you put it, and trust you will have an excellent outcome.

You know you’re in our thoughts and payers, as you weather yet another storm.

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

Crazycat

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Re: Capt Deb cancer update
« Reply #25 on: September 06, 2010, 03:44:32 pm »
Thinking about you every day Deb!

 Maybe I'll chat with you from Phyl's shuttle craft en route to the brunch?
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5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.

Anomar11

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Re: Capt Deb cancer update
« Reply #26 on: September 06, 2010, 08:49:36 pm »
Deb,

You have, indeed had more than your share!  I have a friend who was just treated for papillary/follicular combination after having her entire thyroid removed.  Hers spread to the lymph nodes and the laryngeal nerve, but the doctors feel she will be fine as this is a very treatable cancer.  I also have another friend who went through this 12 years ago, and she is just fine.  You're in my prayers as you go through this and I trust you will be fine too.  You must be sick and tired of one thing after another.

Mona
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L An diagnosed 5/08 2.0 x 1.1 x 1.3 cm.  Cyberknife Stanford Drs Chang and Gibbs Nov '08.  One yr: 2.1 x 1.4 x 1.6, Two yr: 2.2 x 1.5 x 1.8, Three yr: 1.9 x 1.5 x 1.5, Four year 1.6 x 1.1 x 1.1, Six yr: 1.4 x .7 x .9

4cm in Pacific Northwest

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Re: Capt Deb cancer update
« Reply #27 on: September 06, 2010, 08:58:59 pm »
BIG HUG Captain!

From Oregon.

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

cindyj

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Re: Capt Deb cancer update
« Reply #28 on: September 07, 2010, 07:43:17 am »
Thinking of you also as you go through one more trial...if any one has the spirit and will to get through all that has been thrown at you, it's you, Deb!

Hugs,

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Soundy

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Re: Capt Deb cancer update
« Reply #29 on: September 07, 2010, 11:48:14 am »
I continue to keep you in my thoughts ...
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery
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