Well hello AN forum folks,
I'm glad to find this forum, I've never met anyone else with a AN and was floudering around for awhile. I guess awhile is a reach because I just found out last friday.
I had sudden right sided hearing loss during a horrible URI in 2003. I've always had problems with ear infections and fluid in my ears and have had tinnitis off and on since I was a child. Nothing about the event really startled me, well within usual. I visited my PCP for stronger decongestants then steroids for a month, they sent me to a local ENT clinic for "fluid" in my ear. I should have run when he kept sniffing my hair and telling me how nice it smelled. Yes that really happened. As is I just figured he was a harmless old guy, seemed clinically competent. He wanted to rule out a AN and sent me to have a MRI with flares...no contrast. When I called later he said the MRI was negative, he decided the hearing loss 30% was due to a virus from the URI. Years go by and the hearing slowly decreases, last 6 months I'm having directional issues. I self referred to the University of Michigan ENT clinic. My hearing test find 90% loss, was shocked beyind belief. I knew it was worse but had no idea it was that low, just amazing how well the brain adapts. The ENT Doc decides to repeat the MRI because he felt the old mri without contrast would not have shown the tumor even if I did have one to show him. The mri center destroyed the originals in 2010, 7 yrs after the scan and the ent's office can't find the copies that should have been scanned during digital conversion. The radiologists report is awol too...hhmm...(yeah, I do sound bitter, I'm not normally but am still reeling)..the MRI with contrast showed a 1.2cm AN, they pointed out to me where it's pressing on the pons. The neurotologist Dr El-Kashlan came in just a few minutes later to meet with me, I believe he trained under Dr. Telian. My first official appointment is with him next friday.
From the info I've found on here I'm leaning towards surgery. In retrospect there have been quit a bit of odd little symptoms I've chalked up to sinus issues/ migraines and dry eyes. I even had an episode of right eye and mouth droop that lasted about 20 seconds. I had myself convinced I'd become a raving hypocondriac.
I've spent the last few days reading thru the posts and making lists of things I need to do, I have no idea why but making lists has always made me calmer, even if I never DO what's on the list it just makes me feel like I'm taking control. well...thanks to all who have provided so much info, it's calmed me down a lot...