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Author Topic: facial schwannoma  (Read 8487 times)

lyndaviolassi

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Re: facial schwannoma
« Reply #15 on: August 18, 2010, 06:46:05 am »
Hi Karen,
You have definitely found a home here with many supporters.  We are all in this journey together and it makes it a nicer ride when you have someone that understands what you are going through.  I'm so sorry to read about your surgery.  However, I'm excited to hear great results from your second surgery coming up.  Please know that I will be praying for you.  Stay strong.  Stay focused.  Keep the faith.  You'll be smiling at your sweet boys in no time.  :)
Lynda
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KarenE

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Re: facial schwannoma
« Reply #16 on: August 18, 2010, 08:05:15 am »
Wow!  Thanks everyone for all the well wishes!  I live in Pearland, Tx and have 2 little boys, 3 and 6.  I am divorced so my parents have been taking care of me and my boys!  I had my tumor removed in California, but I am having my nerve grafts done in Houston in the medical center.  I actually go for pre-ops on Tuesday.  I am a special education teacher, but have a long term substitute until I am able to go back to work.  I found this website by pure luck of searching for as much information as I could find!! :)
I am still sleeping with a wedge at night since my dr said to stay at a 45 degree angle for 3 weeks.  I'm a little past 3 weeks, but I feel a lot of pressure in my head when I lay down flat.  Hopefully that is normal.
I wear a patch most of the day, just so I can see since I have so much lacrilube in my left eye, everything is super fuzzy!  My youngest son thinks I'm a pirate!  :D
I wish I never needed this site, but I'm glad I found it!
Karen
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3.1 cm facial schwannoma removed 7/23/10 at Skull Base Institute - CA
No hearing left ear
Little balance
Left side of face paralyzed
Have nerve reconstruction surgery 8/30/10

leapyrtwins

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Re: facial schwannoma
« Reply #17 on: August 18, 2010, 11:53:28 pm »
Hi, Karen -

small world.  I actually know someone who lives in Pearland; I know his sister who lives there, too.

Is the surgery you are having called a T3?

Nancyann and Kaybo have both had a T3, with very good results.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

KarenE

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Re: facial schwannoma
« Reply #18 on: August 19, 2010, 06:12:19 am »
Hi Jan!
I'm not sure.  I don't think he ever called it anything.  He's going to take a nerve from my leg and use it to cross connect the nerves in my face.....
Karen
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3.1 cm facial schwannoma removed 7/23/10 at Skull Base Institute - CA
No hearing left ear
Little balance
Left side of face paralyzed
Have nerve reconstruction surgery 8/30/10

Kaybo

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Re: facial schwannoma
« Reply #19 on: August 19, 2010, 08:38:04 am »
Hi Karen!
I am in Houston now - where are you having this done and by whom??  I would LOVE to talk to you or get together.  PM me if you'd like me to call you...We are building a house in Missouri City so I will be out your way!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!
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